RSD Photos and Pictures Thread

alt1268 · 08-17-2012, 02:08 PM

My foot still looks like yours did in the beginning-every night.

Quote:

Originally Posted by nalakity

This is how my foot looked in the beginnning of my RSD...now it just changes color and stays as cold as possible.Attachment 6994

Attachment 6995

alt1268 · 08-17-2012, 02:10 PM

Looks raw and painful. Mine is only in the feet so far but lots of pain in the legs with sensitivity.

Quote:

Originally Posted by cactusfoot

A picture of my misery, hope it works and someone knows a bit about what is shown.

momofrsd · 08-21-2012, 11:43 PM

How are you doing? Has the pain decreased at all. What are you doing for therapy? Your legs look exactly like my daughters and she is in so much pain all the time. I am sorry you have RSD

RSDcandice · 08-22-2012, 07:46 PM

My redness doesnt show up well in pictures, but here is my hand. You can see some of the swelling, and the curled fingers i have. This is on a pretty good day.

andrea puskas · 08-29-2012, 08:41 PM

Hello friend, I can feel just what you are saying.
I live in Fl. now and still have to wear leg warmers to the pool.

What a fashion statement that is!

Laying in 100 *sun and with camo leg warmers on both legs in a bathing suit, and the silly legs are still ice cold.
But, 21 years of this, I have given up pride and frustration, as much as the law allows anyway, and do what I have to do to have fun and live thru it.
So hang in there, it will get better, or you will be healed. Keep the faith it could be worse. I have earned that...God bless. Andie.

Quote:

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

andrea puskas · 08-30-2012, 09:47 PM

Oh you poor thing. I hoped I would never see a photo such as yours again.

But God be with you it isn't easy. I am in year 21 and fortunatley this edema was checked in late 1998 by way of a 5 day symapthetic block. The edema nor the rash ever came back. I would use Aloe from the plant and it cooled it and dried it up some. I was warned by a doc I respected to not use anything lotions just creams. Like good old Ponds cream. I also would use plain vitamin E and glysarin it gave some relief.
I know you must be at witts end, and wish I had a magic answer for yu.
How about some Camomile tea or Valerian root tea to calm those nerves form inside out? I still use this daily. I began treating Homiopathically in about year 5. It has helped and kept me going.

Please know you have a heart out here that hurts with you.
Have to run for now, God bless and keep yu strong.
Peace & LUV, Andrea. RSD from Mars with Luv. Lending Unity for Victory.

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !!

[/QUOTE]

08-31-2012, 07:26 AM

RSDcandice · 09-02-2012, 08:37 PM

Quote:

Originally Posted by andrea puskas

Oh you poor thing. I hoped I would never see a photo such as yours again.

But God be with you it isn't easy. I am in year 21 and fortunatley this edema was checked in late 1998 by way of a 5 day symapthetic block. The edema nor the rash ever came back. I would use Aloe from the plant and it cooled it and dried it up some. I was warned by a doc I respected to not use anything lotions just creams. Like good old Ponds cream. I also would use plain vitamin E and glysarin it gave some relief.
I know you must be at witts end, and wish I had a magic answer for yu.
How about some Camomile tea or Valerian root tea to calm those nerves form inside out? I still use this daily. I began treating Homiopathically in about year 5. It has helped and kept me going.

Please know you have a heart out here that hurts with you.
Have to run for now, God bless and keep yu strong.
Peace & LUV, Andrea. RSD from Mars with Luv. Lending Unity for Victory.

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !!

[/QUOTE]

I use plain ole baby lotion, its the best thing that works for me. They have the oatmeal or aloe kind. both help me. I havent had a bad rash since the begining, (hope i dont jinx it!), i hope you get some relief Andrea.
Ill be praying!!!

Cathy T · 12-11-2012, 01:33 AM

Quote:

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you!

So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy

) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!!

I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

I can imagine what your pictures look like just seeing the one that was posted. My pictures look just like what one finds on any good RSD info site, and I can check off 98% of the symptoms. But... I can't find a doctor who will look at my WHOLE CHART and see the text book in front of them. I don't need a bio of a muscle (can't find a dr who will do one anyway), all they have to do is look, read and listen. I'm having a pain pump trial this week, but what if it isn't necessary? What if there is something that could help if it was RSD? But I don't have RSD, because the legs look like vasculitus, and not sure about the rash, and the other symptoms, well...probably from meds. GRRR. Frustration. I just wanna have a life. Do you know what you call a doctor who passed with a D at the bottom of his class? A Doctor! (just a little laugh, a sad laugh) We have doctors as friends and as relatives. To bad they are far away, and this isn't their speciality. Where are the ones who will listen? Does a pain pump really help RSD anyway? I must look over this site and see what I find.

spiritscript · 03-20-2013, 03:24 PM

What does this look like? Thank you.

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