[mrsD]

@ spiritscript:

I do not have RSD. But I have seen swollen fingers like that,
on myself!

There is a condition called angioedema, which can be acquired from using blood pressure pills called ACE inhibitors. Or it can be triggered in people with a lifelong propensity for it, called hereditary angioedema. This is triggered by invasive trauma, surgery, stress, and certain types of repetitive movements.
It also can swell up internal organs causing abdominal pain, diarrhea, and or vomiting. It can swell your throat, eyes, or any other part of your body. It hurts like the devil, and if it swells your voicebox, you can suffocate. Antihistamines do not work, or steroids for it.

In rare cases it will appear in people who have beginning or undiagnosed blood cancers, like leukemia and lymphoma.

Here are two good links about it.
http://www.hcplive.com/publications/...-04/2005-04_02

http://www.haea.org/

This link shows hand swelling from HAE:
http://www.haea.org/patients/what-is-hae/

Many doctors don't know how to identify it, and really only an immunologist can evaluate the testing these days.

The swelling is different for everyone. Mine tends to be in my abdomen and right hand/arm, and left leg.
Sometimes there is a pink rash, but not always. I had a severe protracted reaction to Lisinopril (for blood pressure),
But after a long investigation by my doctor, it appears I have had "spells" for my whole life of swelling, and pain.

It is possible to have both RSD... chronic back pain, or any other thing along with HAE. HAE really is newly discovered, mostly since 1972. I only bring it up here, because it is likely to be overlooked. And your hand resembles mine sometimes. (mine doesn't get quite so swollen as your picture).

HAE attacks change, they may go down, and return. They don't stay every day the same.

[Ms67GTO]

Bubbleshea, I'm quite taken aback at the pics of the ulcerations on your daughter's legs. I have seen many photos of those "wonderful" rashes and sores we CRPSers get, but never these blistering lesions that ooze this clear liquid. My heart just aches for her and your entire family as this IS a family disease! Have you ever had her checked for MRSA? It is highly contagious, but I just don't feel by seeing these pics that it stems from the RSD/CRPS. I know this is a three year old post, but I'm really worried about your daughter. Can you please tell me how old she is now and how is her condition? May the Holy Spirit fill her with total healing in Jesus' name!

Sherry

[Llynnyia]

ankle and foot swollen and red pattern. so hard sometimes to see the swelling vs the fat but trust me I sure can feel it! Right now even the heaty blanket is too much sensation rubbing on the skin.

[Burnbabyburn]

Galena


Wow we could be hand twins.

Mine is a lot better than when I first got RSD but it looks just like this when it is acting real crazy.

Hugs, soft hugs. How do you wear rings on that hand? Mine if L hand too.

Originally Posted by GalenaFaolan

And last but not least, my hands! Or, I should say hand. Didn't see it as necessary to take a pic of the other one too when it looks just like this one. LOL

[amkxoxo]

Broke my right foot and started getting crazy effects. So scary.

[LovesTerriers]

Originally Posted by amkxoxo

Broke my right foot and started getting crazy effects. So scary.

I totally understand what you are going through. I have CRPS II of my left foot and ankle, which has now spread to my entire leg and back (as a result of a lumbar sympathetic nerve block....doctor did not use enough numbing medication.) My CRPS took a couple months, a couple doctors and many, many tests to diagnose. I was finally diagnosed via a 3 phase bone scan in February of this year. If your "crazy effects" continue, I would definitely get them checked out. Better safe than sorry. And, if by chance you do have CRPS (which I really hope you don't) the earlier treatment is started, the better the outcome.

Here is what my CRPS looks like.

[Kitt]

Welcome LovesTerriers.

[buggyboys]

[dmt1961]

I had TOS also in both arms with 1st rib resections. Developed CRPS body wide. Going to Philadelphia this weekend to receive 10 day low dose infusion of Ketamine. It took 7 yrs for a Dr to change my Dx from Fibromyalgia alone to include CRPS. I guess because I didn't cry and scream in pain instead I held it in. It is a horrible burning sensation that nothing helps except Fentanyl. I know they say Opioids perpetuate pain but I could not have tolerated that indescribable level of torture without it. I hear to have body wide CRPS is rare. Does anyone else here also have it body wide? What is your pain like?

[POP3]

I have had CRPS since 2011 after having compartment Syndrome Surgery. Which was from me punching a wood fence in anger. "Work related" Long story.
I have struggled with this condition like everyone else. I had a very good Pain Doc Frank Hackl in Tuls. But my wife and I have recently moved back home to North Texas. I am struggling to find a doctor to treat me. Much less a doctor who knows what CRPS is. If I had a dollar for everytime I have educated doctors with degrees on this condition, I would be rich!!!
I have had to visit the ER twice in the last 2 weeks for break thru pain relieve. But to only be told we cant help you because of new laws! WHAT really? So what are hospitals/ ERs for again? I am so desperate Ive wanted to chop it off and take it up there and ask for help then..... Does that qualify as a condition?? IDK!! I know this sounds crazy but this pain makes you do and say crazy things. So right now I am waiting on my medical records hopefully get them today or tomorrow. And then the hunt will continue for a educated doctor. I am considering Dallas as we are an hour away. Any suggetions gladly heard here.
Thanks. Paul