[Littlepaw]

Originally Posted by spiritscript

Thank you! The swelling in my right leg and foot has gotten much worse from my last spine injection in November, 2014. Most of the swelling went down but the veins are still awful. Worked up? Ha! My primary and my neurologist's DNP just say that everybody has veins and bruises. Pathetic!

Neurology not caring about venous problems does not surprise me but your primary! Geez. It might be worth a consult with a vascular specialist, could make a difference ......

[Island-girl]

I am new here and just posted an intro on the main forum.

Here is a pic of my CRPS in my right thumb.

[gigisteyer]

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

Hello, I have RSD, which I acquired about two years before giving birth to my twins. After nursing my girls for 4 months, I then acquired TOS, and had an RSD reaction to it that left me ENTIRELY without the use of my hands for 5-6 months. The main thing that helped was to calm down the TOS through the use of a system of different stretches (given to me by my doctor), and going to a hand therapist. Once I calmed down the TOS, I could focus on the rehab for the RSD flare, which for me involved cool/warm soaks, and continued work with my hand therapist, as well as warm water pool therapy. Since getting these stretches, whenever I feel TOS pain coming on in my hands, I start doing the shoulder stretches, and usually can head the RSD pain off at the pass, so to speak. I hope this helps. Gigi

[stillsmiling]

Originally Posted by RSD_Angel

HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !!

I have this also! I've tried everything as well and this will sound like a total contradiction because my skin burns sooo badly too, but I have found ONE thing that will relieve it. Like I said it sounds like a contradiction but, I learned this from a Dr.that was taught this from Johns Hopkins. You elevate it and then "chase" the rash and pain with these large moist heat packs that you can buy from Wal-Mart. They are always on the very bottom shelf near where all the braces are (not with the instant heat packs like therma care that actually seem to make my "rash" and pain worse.) They are in a generic looking box and they are pretty pricey $12 each. They are called "THERMAL on" with a red circle around the word "on". The box is easy to open, and I suggest opening the box and making sure on the actual pad itself the words THERMAL on are written all over the back. You put it on a plate and start out by microwaving 1 minute and 30 seconds, and you can go up to 2 mins. Sometimes I wrap it in a hand towel other times I don't. I bought three and I chase the pain and rash. The Dr. said I can do this for 20 minutes every hour! It has really helped me, and I pray it can bring you even a little relief. I know how it feels!

[stillsmiling]

Originally Posted by Island-girl

I am new here and just posted an intro on the main forum.

Here is a pic of my CRPS in my right thumb.

Welcome to a place where people will truly understand how you feel, where you can talk about ANYTHING, and receive support. We're all here for you,

[Juliek72]

Hello everyone. I am new to all of this and I am so confused about so much and worried about a lot too. I had surgery on June 24 so I'm 3 months post op. I started right after surgery with nerve pain. My ortho and 2 pm Drs have diagnosed me. My symptoms are burning pain in foot with discoloration and temperature different from opposite foot. I also have pain when walking so I use a knee scooter for walking long distances. The burning pain is not constant but it does happen a lot. This past week I started feeling the pins and needles going up my leg to my calf. I'm hoping it's not spreading. I do swell a lot especially when I'm moving a lot or on my feet.
I am working now 3 days a week in a light duty position but eventually I have to be able to stand 8 hours a day. I'm worried about getting to this goal. I will see my Drs this week and discuss nerve blocks. I'm already in physical therapy and I am planning on to continue it.
My meds that I'm on for CRPS is gabapantin 300mg 3xs day, morphine sulphate er 2xs a day. Morphine sulfate 15mg ir as needed. I am also on other meds too due to having major depressive disorder and severe anxiety. I also have insomnia. So I take a number of meds every day. I was on Lyrica but after 3 weeks I started to get sores in my mouth so I went to gabapantin which makes me sleepy.
Here are my questions
Do you think I will be able to stand for long periods of time as to return to work?
I have a lot of short term memory is that meds or CRPS? I couldn't remember talking to a friend on the phone. I also had forgotten what my left and right was while driving.
What is the recovery time of the nerve block and any other info on it?
I'm sure I have many more questions but I thank yall in advance.
************************************************** ************************************************** **

Juliek72 I copied this post & a reply to your previous thread on the main RSD/CRPS section
conversations can carry on at the link below-
http://neurotalk.psychcentral.com/sh...d.php?t=225304

[Littlepaw]

*copied over to Juliek72's thread on the link in her post.*

[Jomar]

Just a reminder that is a sticky thread for RSD Photos and Pictures
So members can share & compare the changes of skin and such.

Discussions are best continued on the main RSD/CRPS area.
RSD/CRPS forum - http://neurotalk.psychcentral.com/forum21.html

[Juliek72]

I was going to post pictures but I couldn't figure it out how from my phone. Sorry about this

[PurpleFoot721]

Not sure if this is going to work but I figured I would share a photo showing the difference in coloration between my right leg, and my left leg. I took this picture on one of the worst days I have had so far. It was 8.31.15, the first day that I had a bad flare in my shoulders, arms, upper back, left thigh as well as my right leg. I was officially diagnosed on 7.21 of this year hence the name PurpleFoot721