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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-22-2015, 10:59 PM | #191 | ||
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I am trying to figure out how to do photos. Wish me luck lol
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"Thanks for this!" says: | PurpleFoot721 (09-23-2015) |
09-22-2015, 11:04 PM | #192 | ||
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I am enjoying this site and talking to others. I just wish I could figure everything out. Lol. This is pics of my CRPS feet
Last edited by Juliek72; 09-22-2015 at 11:13 PM. Reason: Add comment |
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10-19-2015, 12:25 AM | #193 | ||
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Sent from my iPhone using Tapatalk First pic is right after my second procedure Second picture is about 3 weeks after first procedure. I was swollen free for about 3 weeks Third pic is right before 1st procedure. Fourth pic I right after first procedure |
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"Thanks for this!" says: | PurpleFoot721 (10-19-2015) |
10-24-2015, 02:23 AM | #194 | ||
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Junior Member
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my feet look similar, but I thought I just had ugly feet! My RSD is in the left arm but has spread to my right arm, left leg, abdomen, and left booby! No fair! What do I do?
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11-01-2015, 10:53 AM | #195 | ||
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Junior Member
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Quote:
Here is what I have learned in dealing with my flareups: NEVER immobilize area no matter what (tricky when you break something) but this will only make the CRPS rear its ugly head 1000X stronger/longer, but elevating for max 15 minutes is helpful. No matter how painful keep using limb (ex when in my hand I pretend to play the piano, or in my feet rub not only the feet but toes as well. Stimulation is key is keeping circulation going (I use a deep moist heating pad to penetrate muscle deep down) soak in warm Sea Salt water or mineral hot springs as often as possible, keeping the skin moist by using mineral oil or baby oil gel helps a lot; take evening primrose oil to help reduce inflammation, wear loose clothing nothing tight on skin (fleece has been a lifesaver for me) even type of shoes/slippers is huge, I cannot have ice/cold but if you can alternate between ice & heat; Desensitizing skin is another key which I use a variety of methods: gently rubbing different types of material across effected area sometimes just using warm washcloth back & forth then drying it off works. Always keep in mind of what works but don't get too frustrated when that stops working because it might just be a timing thing. Usually it takes several different approaches & several days to work thru the flareups, but eventually it goes back to normal (well as normal as we are faced with). I have many more but don't want to overwhelm you with it all & hopefully some of these will work for you right away. Please let me know if I can be of further help. Gentle hugs |
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"Thanks for this!" says: | DejaVu (11-11-2015) |
11-02-2015, 04:48 PM | #196 | ||
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My left foot just recently started to have the symptoms, but it swells more than my right. My right foot usually is some weird colours, purple, blue...I've asked the doctors and told them "purple is not a normal foot colour for me!" But..Well they've been useless. Gah.
Aren't they just so pretty (sarcasm) |
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11-06-2015, 11:23 PM | #197 | ||
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Quote:
Hammer |
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"Thanks for this!" says: | BioBased (11-07-2015) |
01-05-2016, 11:20 AM | #198 | ||
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. THIS is my first day so don't know if anything is getting through. RSD full body Illinoin here who is annoyed...lol with all the bizarre symptoms as your describing. Anyone out there??
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02-12-2016, 03:09 PM | #199 | |||
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Junior Member
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I figured I'd add to this xp
Today is actually a good day so not too much swelling, but sadly still the same amount of pain. If I was able to take a pic of the bottom of my feet I would. I have terrible blister like things that form and then pop and bleed. Also the sides of my feet are starting to crack completely which obiouslt causes bleeding. I also can't seem to figure out how to add a photo so I hope it worked lol |
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"Thanks for this!" says: | Littlepaw (02-12-2016) |
02-14-2016, 10:18 PM | #200 | ||
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Junior Member
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mrsD, thank you for the great advice! I have been trying epsom soak for my hands, but it did not seem to help much. Maybe I am doing it for too short of a time (25-30 mins each hand) or too low concentration. I am taking magnesium orally and magnesium test came back with 2.1 m/dL with norm being 1.7 - 2.3. How should I take vitamin E -orally or topically? my hands are not black yet :=), I just got this thing 5 months ago, but it is moving fast, I am trying to stop it and hopefully maybe to recover.
Many thanks in advance! |
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