[babydoll]

[QUOTE=RSD_Angel;111021]HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !! ,



hI there, I know your post is old but I have had that ...skin just flaking off, my RSD is in my right hand it seems to happen every so often I think they call it Nuro dermitis, I find that taking a warm bath with epson salts has helped.

[screwballpookie]

I want to thank all of you for posting your pics because it really did help me. Now I know I am not going crazy. The sores are like some of the photos just spread out and it itches really bad and when they break open they are very horrid looking. Sorry I don't have any pics of them, but they are very large in size and some are small and when they finally do heal up after 2-4 months they leave scars like I seen in the pics. My left foot has just recently started acting up and now that I see the pics I am pretty sure that is what is going on with my foot up to my calf of my leg. No I haven't been to a doc for my foot for 2 reasons one I am scared to hear the news and two I have a lot of ugly sores and he tells me I can't let my nerves get that rattled it is not doing me any good. I know this of course but it is hard when you have the life I have. I know i should go and see him about my foot soon but like I said I am scared even though I have a feeling i already know what is going on. i don't want it to get to the point that I can't walk on it. I don't know if that is possible or not but my thinking with rsd anything can happen. Sorry that you are all suffering like me and i wish you guys the best. Take care.

Sincerely,
Screwballpookie

[loretta]

[QUOTE=babydoll;319884]

Originally Posted by RSD_Angel

HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !! ,



hI there, I know your post is old but I have had that ...skin just flaking off, my RSD is in my right hand it seems to happen every so often I think they call it Nuro dermitis, I find that taking a warm bath with epson salts has helped.

Originally Posted by screwballpookie

I want to thank all of you for posting your pics because it really did help me. Now I know I am not going crazy. The sores are like some of the photos just spread out and it itches really bad and when they break open they are very horrid looking. Sorry I don't have any pics of them, but they are very large in size and some are small and when they finally do heal up after 2-4 months they leave scars like I seen in the pics. My left foot has just recently started acting up and now that I see the pics I am pretty sure that is what is going on with my foot up to my calf of my leg. No I haven't been to a doc for my foot for 2 reasons one I am scared to hear the news and two I have a lot of ugly sores and he tells me I can't let my nerves get that rattled it is not doing me any good. I know this of course but it is hard when you have the life I have. I know i should go and see him about my foot soon but like I said I am scared even though I have a feeling i already know what is going on. i don't want it to get to the point that I can't walk on it. I don't know if that is possible or not but my thinking with rsd anything can happen. Sorry that you are all suffering like me and i wish you guys the best. Take care.

Sincerely,
Screwballpookie

Hi Screwballpookie and all, I have the rash, dots, etc. I hate it too. The itching it bad- I have used women's personal creams and helps. My Dr. said I should never been in the sun without hi rated sun block. I know stress-anxiety doen't help us at all, my Dr. has me on Lorazepam 2 mg. 3 times a day. That helps me a lot to keep calmed down, which it quite difficult with our chronic pain and energy loss, lots of losses. Anyway, yes RSD in your feet can cause loss of walking and into the wheelchair. There are other experiences of others now in wheelchair. I have full body RSD, yes both feet.
My toes started curling, so my Dr. had me do exercises in the pool. It really didn't take many months for them to be touching the ground again. Before, I found this Dr.the RSD moved to my left hand and I didn't get my fingers back to rull range of motion, it's more like a claw. If I had gotten to therapy sooner, I know I could have gotten use of my fingers. I've had both shoulders frozen and got 95 percent use back-100 treatments. I've had this 12 years. Today for the first time I decided to call an attorney and apply for Socical Security Disability. Found out I don't qualify. Rats Hope your feet goes well and you can keep them moving. I read today from someone else, they try to walk a little every day that her pain level allows. She has both feet with the RSD.I think I'll start trying tomorrow. It's so easy to stop moving, I tend to do that when I'm really depressed. I'm on two different anti-depress, may ask my Dr. if he things I need to change. Do you go to the Dr. on a reg. basis, to monitor your RSD and meds. I go once a month sometimes every two months. Take care of yourselves, Loretta

[Rita]

http://i68.photobucket.com/albums/i2...a/HPIM0440.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0442.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0454.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0456.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0457.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0458.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0499.jpg

[bassman]

I can't believe it, Rita. Those photos look exactly like my feet. Compared to some of the extreme pics I have seem here, they look mild. But I know better. That "big" foot can feel like it has tons of pressure inside. Good luck to you and Reed.

Mike

[AnnieLee]

Yep, guys and gals, that sure does look familiar. My leg doesn't look so blotchy all the time, but it does whenever it gets cold (or hot, or damp, or the weather is changing). What I have that doesn't go away are the spots that became permanent, and look a little like browed out old bruises that decided to dig roots and never heal. That, and skin that is very different than anyplace else. Sure won't win the beauty contest, RSD-skin...
Maybe they ought to call it Real-spooky Skin Disease...
Annie

[dibug]

Hello wildberry,
Just one thought comes to my mind, MRSA, it's an infection that is very hard to get rid of and has to be treated with complete protection from spreading to other people. A friend of mine had it and he went through three hospitalizations with IV antibiotics and they were like sores in his arm pit. Painful. I'm sure you may have already been tested for that but if not, it looks a lot like MRSA, (mersa)

Good luck,
dibug

[calidad71]

I don't totally accept this yet, but here is my foot (in all it's colors)... this is progression in one week of time...



Deb

[loretta]

Hi Heather, Thanks for the picture. I'm sorry you have this on your face. Do you have sensitive lumps under your skin. I do, in the chin area, cheeks, forhead. I also have red dots and rashes full body. It's bad enough to hurt inside, but could use the outside redness and rashes to go away, right? Take care, your baby is beautiful. Mine is 29....
Oh, I see the red spots on your neck.

Loretta

[loretta]

Hi Deb, So sorry you have RSD. You've come to the right place for fellow friends with RSD that are willing to answer questions and give support. Most of us had never heard of RSD and misdiagnosed and didn't get any treatment till a long time. It looks like your original injurty site is your right foot? RSD can spread rather quickly. You have a very good chance of full remission with the first year. Lumbar Block done by an anethesiologist.
Do you have a RSD Neurologist specialist? Orthopedic? I've never had the blocks, because it was too late. Because your injury is lower body, they inject in the lower spine.
Some have several, and hopefull it stops the pain signals for continuing to go to the brain.
Read all you can, have an experienced RSD Doc. Was it work related? There really isn't a cure for rsd, hope of remission and management of meds and exercise to keep the limbs from freezing up and becoming disabled. Are able to walk on your feet? stretch? epson salt bathing helps. Swimming in 86 Degree water helps a lot. I have full body RSD 12 years. Just ask questions of any of us. Hope for the best? Loretta