[brandypenn]

When I have a vision flare, my pupils get screwy.

[lexiemae1]

Originally Posted by brandypenn

When I have a vision flare, my pupils get screwy.

I know my eyes have never been so bad in such a short period of time,, Seems like i can't bring my eyes into focus for a long time//

[brandypenn]

Originally Posted by SunshineGirl

I know my eyes have never been so bad in such a short period of time,, Seems like i can't bring my eyes into focus for a long time//

That's my problem! Focusing! I always have difficulty scanning rapidly, but when my eyes flare up, I can't focus on anything. My eyes also seem to be working independently.

[lexiemae1]

Maybe it is the drugs we are taking or are u taking aNY, bRANDY?

[brandypenn]

Originally Posted by SunshineGirl

Maybe it is the drugs we are taking or are u taking aNY, bRANDY?

I'm not taking those kind of drugs. LOL When the RSD attacked my vision I went blind for 2 weeks before the doctors figured out it was the RSD. My case is severe. They kept looking for a brain tumor because those were the symptoms that I had.

[bobber]

Originally Posted by SunshineGirl

Here are my pictures of my right foot rsd..

how long have you has rsd? how did you get it and is it spreading , mine is spreading from my right heel to the whole leg ang migrated to the other leg in 3weeks,, any suggestions? diet , what are the magic tricks to keep it in check? thank you bobber

[redface]

:confused:

Originally Posted by bobinjeffmo

Hi,

These pictures were taken shortly before I had my left leg amputated above the left knee this past January. The right leg is also facing amputation due to decreased blood flows, chronic deep vein thrombosis and infections.

Pain levels are rather uncomfortable, but thanks to rather heavy loads of oral narcotics plus my morphine pump (I just had my 2nd one installed a month ago), I usually keep it at a level I can live with.

Anytime I'm just about to loose my mind in pain, I go out and find something I can do for someone I love or care for, because when I do I always get en endorphin hit that gets me through the rougher spots. Give it a try, and you'll see for yourself it really does work! Bob.

[r.s.d.sucks]

hi, ive had rsd for 3 years now and i know what your talking about, the purpilsh almost like a bruseing ur getting isnt a bruse. its acutly your skin changeing color due to verous things takeing place. its one of the big key markers for rsd ,, well not the main but one of the things they look for. its not a rash jsut basicly a symtom of rsd. the burning your talking about i know that pain very very well, i have tryed billions of meds procidors and just things ud never belive some one would try. all in defet. ive talked to others online with rsd and they too have yet to find anything to help with that pain, im sorry to tell you.
what i get are blisters can be from the size of a pea up to a grapfruit, evently the skin dies and flakes off. the funny part is when i first got one, i went to my doc about it cause i noticed a some what raised red full circle forming on my skin, he tested me right away for a fungal infection, and sure enough it was negative.a week later it blisterd up and talk about pain, it took 2 weeks before it finaly burst, and honestly im not sure with was more painfull, the blister or the bursting. anyways ive continued to get them off and on no rhyme nor reson, jsut a symptom that apprentlty isnt commen for rsd but dose happen. i have found one other person who gets them as well. what i want to warn evry one about is. these rashes before they turn to blisters look very very simular to ring worm,, witch is a fungal infection of the skin, and most doctors are very fast to tell u that is what it is, when in fact for the most part its not, it is jsut your rsd giveing u new fun pains. so pls if any one gets one of these make the doctor take a skin scrap sample and check it under the mic so that u know for sure if it is or isnt., there is care that is needed to be taken when u get theses blisters from rsd. im putting up a pic of one i currently have, it started to form about 4 days ago, and i will try to put more pics up as if developes for evry one. has any one ealse with rsd gotten theses things im very curious seeing as ive only spoke to one other person and she lives acrosed the country from me and the docs that do know about rsd say its really very uncommen symptom but dose happen. i hope this helps you guys out some

[DarlaDaniels]

I have had RSD for over 4 years now & have experienced the bluish color changes as well as rashes & mottling, the severe burning & pupil changes & swelling amongst other kinds pf pain. I have not yet had any blistering or clotting, that I am aware of, but I know the coldness & sweating (like my foot is being frozen in dry ice & nothing will warm it or like it is being held on a scalding hot frying pan). For some reason, most of the color changes have stopped & I rarely see signs of them now, but the pain is never ending & because I have had to leave my specialists whom have all seen the signs listed above in the first years after my diagnosis, the new doctors are questioning my diagnosis. It is extremely frustrating. My hearts go out to you all & I thank you for having the courage to tell us your story and post pictures so we know what to look out for. I wish you all the best & hope that yours will soon get better & to you "bobinjeffmo", I pray you will get to keep your leg.

[candicek]

I am new to RSD i have an appointment tomorrow and don't know what to expect. I have seen other doctors with the same complaints and havent been taken serious. I have all the symptoms-feet get cold and extremely painful, then red and extremly swollen, i have numbness and tingling all along my right side and arm, my skin texture have changed to a shiny moist texture on hands and face, i have random stinging when i get warm, along with prickly sensations all over, i sweat uncontrolably and it has interfered with work. i have good and bad days, but the last few have been almost unbareable and quickly increasing to more and more problems. i have some pics of my feet and wonder if anyone elses look the same. I would also appreciate any advice anyone has to offer...thank you