[DDayMBB]

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

[RSD_Angel]

HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !!

[babydoll]

[QUOTE=RSD_Angel;111021]HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !! ,



hI there, I know your post is old but I have had that ...skin just flaking off, my RSD is in my right hand it seems to happen every so often I think they call it Nuro dermitis, I find that taking a warm bath with epson salts has helped.

[screwballpookie]

I want to thank all of you for posting your pics because it really did help me. Now I know I am not going crazy. The sores are like some of the photos just spread out and it itches really bad and when they break open they are very horrid looking. Sorry I don't have any pics of them, but they are very large in size and some are small and when they finally do heal up after 2-4 months they leave scars like I seen in the pics. My left foot has just recently started acting up and now that I see the pics I am pretty sure that is what is going on with my foot up to my calf of my leg. No I haven't been to a doc for my foot for 2 reasons one I am scared to hear the news and two I have a lot of ugly sores and he tells me I can't let my nerves get that rattled it is not doing me any good. I know this of course but it is hard when you have the life I have. I know i should go and see him about my foot soon but like I said I am scared even though I have a feeling i already know what is going on. i don't want it to get to the point that I can't walk on it. I don't know if that is possible or not but my thinking with rsd anything can happen. Sorry that you are all suffering like me and i wish you guys the best. Take care.

Sincerely,
Screwballpookie

[loretta]

[QUOTE=babydoll;319884]

Originally Posted by RSD_Angel

HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !! ,



hI there, I know your post is old but I have had that ...skin just flaking off, my RSD is in my right hand it seems to happen every so often I think they call it Nuro dermitis, I find that taking a warm bath with epson salts has helped.

Originally Posted by screwballpookie

I want to thank all of you for posting your pics because it really did help me. Now I know I am not going crazy. The sores are like some of the photos just spread out and it itches really bad and when they break open they are very horrid looking. Sorry I don't have any pics of them, but they are very large in size and some are small and when they finally do heal up after 2-4 months they leave scars like I seen in the pics. My left foot has just recently started acting up and now that I see the pics I am pretty sure that is what is going on with my foot up to my calf of my leg. No I haven't been to a doc for my foot for 2 reasons one I am scared to hear the news and two I have a lot of ugly sores and he tells me I can't let my nerves get that rattled it is not doing me any good. I know this of course but it is hard when you have the life I have. I know i should go and see him about my foot soon but like I said I am scared even though I have a feeling i already know what is going on. i don't want it to get to the point that I can't walk on it. I don't know if that is possible or not but my thinking with rsd anything can happen. Sorry that you are all suffering like me and i wish you guys the best. Take care.

Sincerely,
Screwballpookie

Hi Screwballpookie and all, I have the rash, dots, etc. I hate it too. The itching it bad- I have used women's personal creams and helps. My Dr. said I should never been in the sun without hi rated sun block. I know stress-anxiety doen't help us at all, my Dr. has me on Lorazepam 2 mg. 3 times a day. That helps me a lot to keep calmed down, which it quite difficult with our chronic pain and energy loss, lots of losses. Anyway, yes RSD in your feet can cause loss of walking and into the wheelchair. There are other experiences of others now in wheelchair. I have full body RSD, yes both feet.
My toes started curling, so my Dr. had me do exercises in the pool. It really didn't take many months for them to be touching the ground again. Before, I found this Dr.the RSD moved to my left hand and I didn't get my fingers back to rull range of motion, it's more like a claw. If I had gotten to therapy sooner, I know I could have gotten use of my fingers. I've had both shoulders frozen and got 95 percent use back-100 treatments. I've had this 12 years. Today for the first time I decided to call an attorney and apply for Socical Security Disability. Found out I don't qualify. Rats Hope your feet goes well and you can keep them moving. I read today from someone else, they try to walk a little every day that her pain level allows. She has both feet with the RSD.I think I'll start trying tomorrow. It's so easy to stop moving, I tend to do that when I'm really depressed. I'm on two different anti-depress, may ask my Dr. if he things I need to change. Do you go to the Dr. on a reg. basis, to monitor your RSD and meds. I go once a month sometimes every two months. Take care of yourselves, Loretta

[Rita]

http://i68.photobucket.com/albums/i2...a/HPIM0440.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0442.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0454.jpg
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http://i68.photobucket.com/albums/i2...a/HPIM0458.jpg
http://i68.photobucket.com/albums/i2...a/HPIM0499.jpg

[KatTru]

I've had RSD/CRPS for many years. Started in my left arm, has spread to upper torso and face, and left arm. I was on morphine for a few years until my new pain specialist took me off of it and put me on ketamine. The swelling went down some, the rash has almost disappeared, I still have discoloration but the burning is gone. The spread of CRPS has not stopped but I am real thankful for the ketamine. It works for me and others, but some folks don't have as much luck on it. I think the morphine actually made the symptoms worse.
Just thought I'd throw this in.

[loretta]

[QUOTE=babydoll;319884]

Originally Posted by RSD_Angel

HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !! ,



hI there, I know your post is old but I have had that ...skin just flaking off, my RSD is in my right hand it seems to happen every so often I think they call it Nuro dermitis, I find that taking a warm bath with epson salts has helped.

Hi Babydoll, For some reason, skin problems go along with RSD. I, too, have rashes, red spots with itch, some turn to a permenant brownish mole. I use neosporin, clear lotion for poison ivy, women's personal lotion., None of them burn or make it worse. baths with epson salt help. I don't have alloydonia, so I use a fan by my bed to keep from sweating and getting too warm. RSD affect circulation, body temperature. I have both the burning and the cold to the bone RSD. High and low blood pressure. Hope this helps. Take care, Loretta

[deb115]

[QUOTE=RSD_Angel;111021]HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesnt look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^* and wondering if any of you other RSDers have this.. dont knw if its like a nerve rash or?? this Rash is every where that ihave RSD.. and thats it.. it goes up my leg in the same pattern and in to the other thigh. it avoids where i dont have RSD.... any ideas?

I am gonna post pics soo be forwarned..lol I have tried to put evrything on it , from lubriderm fragrence free and alcholol free and just plain aloe, but everthign makes it worse and it burns like somthing fierce!! HELP!!!!!!!!!!!!!!m Thanks guys !!


Hi there,
My name is Deb,and I have had CRPS/RSd for over a yr now on my left leg and I just found this site today. This is the first time I have seen others with my rash.The one I am currently getting looks like the one in this picture you have.Even my specialists has not seen the rash ever. Yours is almost the same as mine. I am going to put up a pic if I can. I was just prescribed a spray for it by my pain management DR it is Ketamine,lidocaine, MSM and tera hydrochloride. YOu should ask for it as it healed,& helped my 3rd rash almost before my eyes it was a miracle really. I can't figure out how to do a picture can someone explain it to me?? PLease and many thanks. Deb

[GoTimothy]

Originally Posted by RSD_Angel

HI there,

I have been going nuts with this and its only getting worse... I have this "rash" but it doesn't look or feel like a rash, and it looks like bad dry skin but its not dry at all. very soft.. but this hurts like H3^*

I HAVE THAT ON MY LEGS, BUT NOT AS BAD. My doctor said it was psoriasis, but I don't think so. I thought it was caused by my
stellate ganglion block that I had in 1993. You might not have noticed the hair loss on the legs like I notice. I had hairy legs, but now there are bald spots on them. I live in Michigan and It gets worse when it starts to get cold. I have to put tons of lotion on three or four times a day. I use the cheep stuff, Suave Skin Therapy. But after winter starts I don't need so much and in spring none at all. The legs itch like hell, but I know better not to scratch. Yours looks like your using oil which makes them soft but that made mine worse. The oil does not allow the skin to breath. Try a different lotion. Was wondering where you live. I am thinking moving to where it does not get so cold.