[WickedGood]

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

[Shelley neck]

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

Hi mark, i have a black walker that has a basket for shopping to, i will race ya. I hope you enjoy your time catching up with family. If you ever wont to get out of the cold i live in Sunny Queensland Australia come for a visit. I started getting swollen ankles and pins and needles in my legs from surgery and figured i sat around to much, thats were the walker came in handy. i also learnt that i dont sweat any more so all the fluid builds up so take fluid retention tablets, dont know if that will work for you. But to live in Sunny Qld and not sweat is not funny.

[flcracker57]

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

Been on long-term morphone for 1.5 years. It won't hurt you, I guess! Supposed to have a Stellate Ganglion Block in my neck in 2 w3kws. Nothing else has worked. Had every kind of injection and therapy known to man. All that's left is a stimulator, and I'm not keen on that. Anyone care to give their experiences with the stellate ganglion blocks? Thanks!

[yiisd]

I have taken Morphine ( both long acting & immediate acting ) for 9 years. I (on my own) try to lower the dosage, even if just for one or two dosages. I have found that this helps from preventing a "tolerance" to the drug - which is what I think you fear. There are MANY, MANY pain meds out there that are Stronger than Morphine - So don't worry that you will reach the pinnacle of pain meds.
I truly am not a proponent of Holistic medication, BUT ... I will share my last week's schedule with you: 3:00 am - 2 Morphine Imm Release, Ice Packs on the most painful (YES IT HURTS WORSE AT FIRST, BUT I PROMISE IT WORKS) Ice Packs left on 20 minutes - be careful not to freeze the skin, ; Stretching ( just moving even if a small bit for 30 minutes, then 1 Klonopin, then 4 hours & I take 1 Soma, then the Ice Routine, THEN 1 LONG ACTING MORPHINE.
Then I repeat my regime again. Though I don't like it, I DID take Morphine for so long that it began to stop helping me.
I'm not saying my schedule is for everyone, but I am taking, or Applying something for my pain almost every hour.
I could not live without Soma & Klonopin. I would give up Morphine before Soma or Klonopin.
Don't worry about running out of strong enough drugs .... NOW Whether they will prescribe them for you or not is an entirely different matter. I have NO FAITH in the medical profession any longer. The "new healthcare program", has & WILL, in my opinion, make it extremely hard for doctors to treat their RSD patients as the doctor would if he were allowed to use purely his medical knowledge & judgement. It terrifies me! FRENCH FRIES! OH PLEASE! We have people with REAL MEDICAL ISSUES who are IGNORED, IGNORED .... But we can talk about Mrs Obama's love for French Fries for Days! Would you say the priorities are not straight??
I'm convinced I must leave the U S to get the appropriate treatment. It is so very sad!!

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

[DarlaDaniels]

I too would say do not worry about that. I have had to change or switch back & forth to different meds many times, with the long-acting because my body would build a tolerance. As for the short-acting, I could not survive without my SOMA, either & the insurance has tried many times to say that it is not needed for RSD/CRPS....I wish they could get this to find out how well they would do without it. I also use NORCO for pain which works great for me & without the side effects so many others have. I took Morphine for years but I switched out of it about 8 months ago & now use the Fentnyl patch for long-acting & am much happier with it. However, as I have found with all long-acting's I have been on, none of them work as long as they promise & I find that the short-acting is what saves me.
Washington State recently passed a Chronic Pain Bill that has capped the amount of pain meds our doctors can prescribe to us if we do not have cancer.....YES, they word it just like that. Cancer pain & everyone else with NON-CANCER related pain. Us NC patients are now subjected to more consultation with yet more doctors (like we haven't seen dozens already) to get the correct dosages to allow us to live a somewhat functional life. So, as it said in the previous reply....don't worry about what meds, just worry about if you will be able to get your doctor to prescribe the dose you need to control it.

[Jimking]

I thought applying ice-packs to RSD pain was not recommended? Also, what is SOMA.

[elijjennings]

My doctor does not recommend ice packs for RSD. Although other docs have told me whatever makes you feel good is what you should do for your body. Also, SOMA is a muscle relaxer. Although technically it isn't a "true" muscle relaxant from my understanding. Just a newer drug.

Here are my RSD Pics if this works right....

[ballerina]

Originally Posted by DarlaDaniels

I too would say do not worry about that. I have had to change or switch back & forth to different meds many times, with the long-acting because my body would build a tolerance. As for the short-acting, I could not survive without my SOMA, either & the insurance has tried many times to say that it is not needed for RSD/CRPS....I wish they could get this to find out how well they would do without it. I also use NORCO for pain which works great for me & without the side effects so many others have. I took Morphine for years but I switched out of it about 8 months ago & now use the Fentnyl patch for long-acting & am much happier with it. However, as I have found with all long-acting's I have been on, none of them work as long as they promise & I find that the short-acting is what saves me.
Washington State recently passed a Chronic Pain Bill that has capped the amount of pain meds our doctors can prescribe to us if we do not have cancer.....YES, they word it just like that. Cancer pain & everyone else with NON-CANCER related pain. Us NC patients are now subjected to more consultation with yet more doctors (like we haven't seen dozens already) to get the correct dosages to allow us to live a somewhat functional life. So, as it said in the previous reply....don't worry about what meds, just worry about if you will be able to get your doctor to prescribe the dose you need to control it.

Do the newer drugs work as well for you as the morphine ?

[Abbie]

JUST A REMINDER...

Please post on the main RSD forum. Everyone is important!!! We don't want anyone to get lost or forgotten!!!

Many posts get lost on this thread (RSD Photos and Pictures Thread) as this thread is not often looked at or read.


If you are replying to a thread here, and you want to make sure it gets read, you can always

1. click on quote...
2. then highlight the quoted information... right click, click on "copy"
3. Click on your browsers back button twice.
4. Click on New Thread
5. Right click in the main section... then paste.
6. Don't forget to put something in the title section... ie...attn--the person quoted.
7. After the quoted section you can write whatever you need to ask or talk about.

Thanks,

Abbie

[kimberlyluv]

Originally Posted by WickedGood

Well It has now been four days since my visit to my Doc about my severe all over pain (especially in my knees along with the swelling). She too thinks that after going off the Narcotics that I was on for so long all the pain in my body reared its ugly little head all at once. Now for leg pain - ready for this -

GOUT

Yuppers. Big time!. What a pain. I am not surprised though. I haven't had that yet! Go figure. The knees are ugly and my feet won't win any beauty contest soon either I can assure you! So My sister will be here tomorrow and is taking me back to Maine for a week or two for some well needed family bonding. I have not seem my family since my Mom passed over three years ago now. I miss them so and I need a break from sitting in this house alone all the time. My Doc also prescribed me a new walker on Monday to help me get around better (It's Real Fancy ) but it is just to dang cold to go anywhere. But it does have a seat so I can give all of you a ride and a removeable basket so we can go shopping!!!!!! I have attached a pic. You have to help me give it a really cool name. It is blue.

I think that while I am home I might get another opinion about a few things. It couldn't hurt could it. Plus my Doc now has me on Morphine and I am scared of what will happen to me when that no longer works. What else is there at that point but to take me out behind the shed? Right?

Well I feel so depressed and blah right now that I hope this little visit will change things but I am not one to expect to much these days. I would rather spend a week with some of you and maybe someday that might happen you never know. Anyway, I will close for now. As always, I luv ya all. Thanks as always for comfort and support. Will be talking soon. Keep ya chins up the best ya can!!! Love Mark

i have had rsd and cprs 2 for over 7 years i have been on cruthches for over 7 years and i have not sat or layed normal for over 7 years! i got it from a injection that was suppose to be normal in the hip well when she was giving it to me i freaked begged her to stop the pain was unbarable i new something was wrong shocking stabbing burning clear to my foot she finished the injection anyway and after i could not walkthey were rude to me didnt care come to find out she was not certifi give injectionsand didnt measure and stuck the needle right in m y sciatic nerve and to top it off the medica she used she did not dilute it so it was like acid it fried my sciatic nerve so that caused sciatica palsy calsgia rsd cprs2 can not be touched hypersensa bad toe nails are like crackers in both legs now going to arms and hands legs are ugly cant bend knee toes right after the shot i could not neither but anyway its ruined my life hard on my kids i am barly hanging in have tried to end it at times!! but i have been on morphine for 7 years and perco and have been on the same dose for 2 years u get ammuned to it after awhile it is barly helping me now just tried the calmare not good exper but going try again with a doc i hope knows how to run the machine this time! and also my doc i had who specali in rsd cprs2 one of the main doct in ut county just retired so i dont have a doc right now neither no insurace again ssi did legally declare me disabled for life but cant get medicare yet trying for medicaid was on that but making me redo it! i would try the morphine it has helped me alittle with pain but nothing has helped me to be able to sit down and put pressure on my right bottom and leg but not comman for someone to get a injection in the sciatic nerve neitherthat is why others with rsd and cprs can sit but i cant bcause mine was a direct hit and direct burn to the sciatic nerve! anyway i hope u have a nice time with ur family! and do try the morphine they can up the dose when get immuned to it