Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-25-2007, 09:35 PM #1
Marse Marse is offline
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Default Looking for some answers

Quote:
Originally Posted by GalenaFaolan View Post
And last but not least, my hands! Or, I should say hand. Didn't see it as necessary to take a pic of the other one too when it looks just like this one. LOL
Hello GalenaFaolan,

My name is Marse, short for Marcella.
My veins pop out too. If I may ask, what type do you have.
I am beginning to see red spots on my left ankle/foot but have
the RSD in my two upper limbs. Do you know if the dots itch?
I also have cysts in my left wrist and left foot/ankle about the size
of a marble. Do you know if this is related to RSD? I would really appreciate
your knowledge on these as I do not know where to turn. I am sorry to see
that you are not doing so well. I hope things get alittle easier to deal with
as I cannot imagine what you must be going thru. My guess would be you are
in the final stage?. Take care of yourself
Marse
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Old 09-26-2007, 10:39 PM #2
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I have type 1, no nerve injury.

My dots do itch sometimes but mostly they're just really annoying and turn into sores. I hate it with raised ones that get caught by the razor when I'm shaving my legs, open up and, you guessed it, turn into sores. LOL

I don't know about cysts. I've only had one in my entire life, way before rsd. Don't let them go, have a doc check them out. Usually they need to be removed. My husband is prone to them, and has had to have one removed, the others usually,ick,burst. With RSD you can't take the chance it'll get infected going that route.

I don't believe in stages and docs are getting away from it as well. I just know where it hurts and that's enough. LOL I keep a good sense of humor and don't let it get me down. I rule it, it doesn't rule me!

Hugs,

Karen

Quote:
Originally Posted by Marse View Post

Hello GalenaFaolan,

My name is Marse, short for Marcella.
My veins pop out too. If I may ask, what type do you have.
I am beginning to see red spots on my left ankle/foot but have
the RSD in my two upper limbs. Do you know if the dots itch?
I also have cysts in my left wrist and left foot/ankle about the size
of a marble. Do you know if this is related to RSD? I would really appreciate
your knowledge on these as I do not know where to turn. I am sorry to see
that you are not doing so well. I hope things get alittle easier to deal with
as I cannot imagine what you must be going thru. My guess would be you are
in the final stage?. Take care of yourself
Marse
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Living, loving and laughing with RSD for 14 years and counting.
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Old 12-30-2007, 03:51 AM #3
wildberry2277 wildberry2277 is offline
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Unhappy please help

http://i231.photobucket.com/albums/e...cture338-1.jpg


I need some help from my fellow RSD friends... I have no idea what this is andi keep getting it and it hurts like hell... The burning and pain is so intense in my armpit area.. and this is where i keep getting this stupid sore... Also get hair folicole infections... and have to go on course of antibotics for it... have any of you ever had this... the anitbotics... do not really clear it up?


PLEASE HELP

Much love and hugs to all
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Old 12-30-2007, 06:56 AM #4
tayla4me tayla4me is offline
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Hello Jacquelina,

That looks really sore. It doesn't seem to be in your armpit and so unlikely to be a hair follicle infection but because of it's shape it looks like a really nasty allergic reaction to the fabric in the edge of your bra or some other clothing.
I had a similar thing from a certain very stiff lacy bra--it looked like it was pinched and burnt.
I would use Aloa Vera to start with and cover it with some soft gauze to stop it rubbing and then if it doesn't work perhaps your doctor may need to prescribe a steroid cream or something.

I do hope that it gets better soon as the extra pain from that is just not right!
Take care
Tayla
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Old 12-31-2007, 01:48 AM #5
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Unhappy

It for sure isnt from my bra... i did an experiment.. I wore a sports bra for 2 weeks and still got the same open sore... that calms down with antibotics and then flares right back up... i really dont know what is going on and it hurts so bad... About the Hair folicile thing... I get that too at the same time this gapping sore starts... UGH it hurts
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Old 12-31-2007, 02:03 AM #6
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I wonder if it's like shingles??

how often does it happen and and how long does it last ?
It almost looks like a burn or a rubbing friction causes it...
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Old 01-02-2008, 02:51 PM #7
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Unhappy Hey all

I have been tested for shingles ever time and its not it... The doctor thinks i might beging skin break down in that area... because that is where the RSD is the worse.... I dont know it hurts liike HELL... I dont always want a gapping hole in my arm.... it lasts until i get anitboitics... and 2 days after they are gone... RIGHT BACK TO GAPPING HOLE... It smells disgustin... Sorry for sharing all this just have no idea what the heck this is... Thanks for all your help....
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Old 09-13-2008, 10:50 PM #8
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Hello wildberry,
Just one thought comes to my mind, MRSA, it's an infection that is very hard to get rid of and has to be treated with complete protection from spreading to other people. A friend of mine had it and he went through three hospitalizations with IV antibiotics and they were like sores in his arm pit. Painful. I'm sure you may have already been tested for that but if not, it looks a lot like MRSA, (mersa)

Good luck,
dibug
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