Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-15-2011, 05:53 PM #11
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Originally Posted by catra121 View Post
Unfortunately I'm not in your area or familiar with doctors that would be...but I am sure someone on here can give you some advice about a good one. Have you just been seeing an orthopedic? I know many people on here see several doctors with one sort of being the "lead"...usually a pain management specialist and a neurologist combined with physical therapy, chiropracter, primary care physician, or possibly others that escape me at the moment. Everyone is different of course...the most important being that you just find a doctor who can give you the care you need.

The couple othopedic doctors I have seen have told me that since RSD is not an "orthopedic" condition and I am fine from an "orthopedic" standpoint that there is nothing he can do for me. Maybe from an insurance perspective or SSDB standpoint you would need another specialist who is more familiar with treating RSD? This is just a guess...but it seems like insurance companies are getting more nit-picky when it comes to these sorts of things...always looking for a reason to deny coverage. Maybe there are new rules in place that limit what types of doctors are able to certify disability for specific conditions? In which case maybe your current treating doctor might not be "certified" to fill out a form for permanent disability based on your diagnosis. Or maybe they require doctors to take continuing education to maintain their ability to be "certified" and be recongnized to fill out such forms?

Unfortunately those are just guesses. But in your search for a new treating physician it is a question you should definitely try to get answered up front. And I am sorry that you have to go through this because I can only imagine it will take time before a new doctor would be willing to fill out such forms for a new patient...as they wouldn't know you well enough at the get go to be able to say whether you are or are not permanently disabled. Maybe your doctor who cannot fill out the forms now could refer you to someone who can...someone he has a professional relationship with that would be more inclined to respect and agree with his assessment of your disability?

I'm sorry I don't have anything more useful to offer except my sympathy for the situation you find your self in. I hope someone pops in soon with some doctor recommendations for you.
When I asked him who I can go to, he said I don't know. Strange.
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Old 12-15-2011, 07:21 PM #12
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Hmm, sounds like he isn't interested in going out of his way at all.
Seems like most up to date Drs would at least know how to find a good referral for a patient.

I wonder if you medical insurance provider/carrier has a nurse line or "find a doc" on their website?

Or possible your local hospital has a referral service that will be of help?
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Old 12-15-2011, 10:51 PM #13
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SSDB? I'm familiar with SSI and SSDI...

I just want to clarify before commenting further.
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Old 12-16-2011, 08:49 AM #14
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SSDB? I'm familiar with SSI and SSDI...

I just want to clarify before commenting further.
I believe it's like SSDI whereby I worked and paid SS taxes long enough to apply. I believe they refer to it as I had enough credits of working years to apply. It's not SSI.
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Old 12-16-2011, 01:43 PM #15
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I believe it's like SSDI whereby I worked and paid SS taxes long enough to apply. I believe they refer to it as I had enough credits of working years to apply. It's not SSI.
What your describing is SSDI.

SS will send out CDRs, but yearly would be very surprising. The short form asks if you've discussed certain things with your doc, but does not require a signature from your doc.

Social Security does not require special certification from doctors, all that is required is q valid medical license. Your doc's opinion, both upon initial application and during a Continuing Disability Review, is only one factor in regards to your receiving benefits. Even if you're sent to a "Social Security" doc, they can only give their opinion of the severity of your disability, they don't have the power to grant or deny your SSDI benefits.

Your doc may no longer be comfortable supporting your disability claim. Or he might just be misunderstanding what's required of him. Please verify his signature is even required. If you can post the SS form number if you have more questions, that would help.

Last edited by LIT LOVE; 12-16-2011 at 02:03 PM.
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Old 12-17-2011, 05:15 PM #16
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What your describing is SSDI.

SS will send out CDRs, but yearly would be very surprising. The short form asks if you've discussed certain things with your doc, but does not require a signature from your doc.

Social Security does not require special certification from doctors, all that is required is q valid medical license. Your doc's opinion, both upon initial application and during a Continuing Disability Review, is only one factor in regards to your receiving benefits. Even if you're sent to a "Social Security" doc, they can only give their opinion of the severity of your disability, they don't have the power to grant or deny your SSDI benefits.

Your doc may no longer be comfortable supporting your disability claim. Or he might just be misunderstanding what's required of him. Please verify his signature is even required. If you can post the SS form number if you have more questions, that would help.
Thanks but I just realized I may have confused you. It is just an insurance form--not a SS form and you are correct in what you say above that it is only "their opinion" they do not ultimately grant or deny . I did find out that anyone with a physicians license who is treating me for this disabilty can sign.
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Old 12-17-2011, 05:21 PM #17
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Default Accupunture and RSD

Does anyone know if Accupunture and RSD mix. I am thinking of getting it done and wanted to get input from others who may have tried it. Thanks.

I hope I am posting this question in the correct place.
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Old 12-17-2011, 08:08 PM #18
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You could start a new thread, since not everyone looks at every thread.

I've had it done and had some relief. I've also had a very scare experience of mirroring in my "good" hand caused by an IV needle in the same spot two weeks in a row.

Accupressure might be safer.

You just never really know with RSD... You're also unlikely to find someone with RSD experience. If you try it and have a flare--especially in a new region--treat the problem area quickly and aggressively like you wood with any new problem area. For example, I dropped something on my foot yesterday. A few hours later and my foot was ice cold and RSD pain was creeping up... I through on a Lidoderm patch and took extra breakthrough meds. The pain is reduced to a level that seems appropriate to the injury now, but the temperature regulation is still off... It took me about a week to get my hand back to normal after my IV scare.
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