Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-05-2012, 07:26 AM #1
nigel ep3 05 nigel ep3 05 is offline
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Default PULSED Radio Frequency

My pain doctor wants to try out PRF to stop a nerve from firing which is triggering my crps.

Has anyone had this done and did it help? She stressed that its totally different than RF as it dosent reach temperatures to kill the nerves just pulses them so no damage is cause. She has performed PRF on other patients with similar symptoms and crps with good success.

I am unsure about this as my leg is so sensitive and reacts to everything let alone sticking a needle in the place with most pain. The needle is only 5mm and will go through torture if this will help me.
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Old 01-05-2012, 10:02 PM #2
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Where is the needle placement? In my case it was in my spine like a regular stellate ganglion block.

If it causes your RSD to worsen, it can be permanent. Get a 2nd and 3rd opinion until you feel comfortable--and not by another local doc. This is NOT a common practice with RSD patients. It might be ok, but I'd be very sure before going forward.
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Old 01-06-2012, 06:31 PM #3
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nigel, I think I've heard some negative stuff about that procedure. Be very careful.
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Old 01-06-2012, 07:16 PM #4
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nigel,

I'd do LOTS of homework on that procedure before undergoing it. And I would certainly seek other opinions.

Generally speaking, in my humble opinion, attempts in this category may carry more "risk" than reward. These doctors certainly mean well, but if it results in increased pain...you are left proverbially "holding the bag".

It is difficult because as you mention, we are all looking for the "magic bullet". Unfortunately, it may not exist.

Maybe somebody with some more actual knowledge of this technique will chime in??

From an article I read on PRF.....

"Use of RF treatment for the purpose of sympathetic blockade has the advantage over surgical resection, phenol or alcohol neurolysis because of being more selective and thus causing fewer complications.

PRF is a relatively new technique where short bursts of RF energy are applied to nerve tissue. It is suggested to be a minimally neurodestructive alternative to RF heat lesions, because of a potentially better risk/benefit ratio

However, clinical advantages and mechanisms of this treatment are still unclear. In none of the published reports, neurological side effects
or complications with PRF have been mentioned but it should certainly share some of the complications of conventional PRF such as epidural, subdural, or subarachnoid injection and trauma to the intervertebral disc, spinal cord and exiting nerve roots due to needle misplacement as well
as infection"
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Old 01-06-2012, 07:25 PM #5
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Nigel, I posted two threads on the subject from NT site. Please read.
http://neurotalk.psychcentral.com/sh...adio+Frequency

http://neurotalk.psychcentral.com/thread156450.html

Last edited by Jimking; 01-06-2012 at 07:41 PM.
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Old 01-07-2012, 05:34 AM #6
nigel ep3 05 nigel ep3 05 is offline
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I have done some research and PRF doesn't seem like the standard procedure for CRPS. Im not sure why she is so convinced that this is the first option she wants to take. Apparently she has patients with crps who do it with good results. Some do it and have less or no pain and then redo it in 6 months etc. She has also cured someone with crps and has performed this treatment 3 times together with blocks etc...

Im still not confident with this treatments as im scared it can make me worse. My pain has really been increasing lately, maybe to the lack of pool and the weather but I cant site around in so much pain constantly as my leg is getting too small and weak.

Should I be doing sympathetic nerve blocks to block the pain and help me to do PT? Does crps just keep get worse? Cant you improve pain and function along the months?
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