Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-08-2012, 08:06 PM #1
ballerina ballerina is offline
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Default Would like to Compare notes with fellow tDCS users

I am starting a new thread for folks with CRPS who are treating successfully with tDCS. I am particularly interested in Booster treatment schedules that have worked, but any and all information would be helpful to all of us.
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Old 01-08-2012, 10:19 PM #2
Joydee Joydee is offline
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Default Would like to compare notes with fellow TCDS users

Quote:
Originally Posted by ballerina View Post
I am starting a new thread for folks with CRPS who are treating successfully with tDCS. I am particularly interested in Booster treatment schedules that have worked, but any and all information would be helpful to all of us.
Hi,

I wish to thank you again for your courage, in pursuing treatment with
this device and your willingness to share your experiences. Words
cannot express my gratitude. My thirty six year old daughter developed
CRPS in her right hand and arm after having surgery to her arm and hand
in the fall of 2008. She has had some procedures, none which were
effective and relies upon medication for relief.

Long story shot it was through your posts, and subsequent contact with the
center in Alanta I hope soon to convience my daughter she should give these
treatments a try. The information from both the doctor suggests due to the
ease with which these treatments can be applied there is the chance of
home use. Therefore should our journey toward this procedure take place
I think you have a wonderful idea sharing experiences. Do you have any
idea how many folks are out there who have had TCDS for CRPS or even
using the device for home treatment.

Joydee
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Old 01-09-2012, 08:49 AM #3
Jimking Jimking is offline
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Thanks ballerina for you keeping everyone abreast on tDCS. I'm trying to move my wife into taking this procedure serious.
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Old 01-10-2012, 02:30 PM #4
Joydee Joydee is offline
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Quote:
Originally Posted by ballerina View Post
I am starting a new thread for folks with CRPS who are treating successfully with tDCS. I am particularly interested in Booster treatment schedules that have worked, but any and all information would be helpful to all of us.
Hi ballerina,

I spoke with Dr. Fudegy today. As you know he is at the clinic in Atlanta.
I had explained to him we would not be able to make the trip until the first
part of April, but I would still like to provide some additional information.
Dr. Fugedy said he was in the process of adding more comments to his
web site specific to CRPS.

Since my daughter also suffers from migraine headaches, I asked about
that condition. He says TDCS is used for this condition as well but the
application is different.

Would you mind providing another post as to how you are progessing
with the treatment and again thank you for your sharing.

Joydee
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Old 01-10-2012, 03:10 PM #5
ballerina ballerina is offline
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Quote:
Originally Posted by Joydee View Post
Hi ballerina,

I spoke with Dr. Fudegy today. As you know he is at the clinic in Atlanta.
I had explained to him we would not be able to make the trip until the first
part of April, but I would still like to provide some additional information.
Dr. Fugedy said he was in the process of adding more comments to his
web site specific to CRPS.

Since my daughter also suffers from migraine headaches, I asked about
that condition. He says TDCS is used for this condition as well but the
application is different.

Would you mind providing another post as to how you are progessing
with the treatment and again thank you for your sharing.

Joydee
Hi Jodee,

Great to hear about you upcoming appointment with Dr. Fugedy. I will be counting the days with you.

tDCS is used to successfully treat many forms of chronic pain, from migraines, CRPS, and fibromyalgia to more rare conditions like vulvadynia.

Please see below post of January for an update on my progress.
http://neurotalk.psychcentral.com/thread160980-4.html

Best to your daughter while she waits for her appointment!
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Old 01-11-2012, 12:29 AM #6
margarsa margarsa is offline
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Default Protocol guidelines, ie where to look for info

I am hoping for some guidelines of treatment protocols ( lead placements) that has any degree of success. Understanding the obvious of if the arm hurts , treat the arm, however the pain is all the skin, head to toe, as in not able to wear any clothes for the last 3 of 4 years. When a touch should be a touch, not a scream.also what about the natural depression that happens with pain syndrome (the origin of injury was a chemical exposure)what is lead placement for depression, insommula,. I am hoping to get started asap, and plan of documentation of treatment and positive and neg results, ect.hopefully the point to reduction of pain and reduction of narcotics. the doctors really try to help with "how about this drug?", however maybe the answer doesn't have to be MORE MEDS......QUOTE=ballerina;839129]I am starting a new thread for folks with CRPS who are treating successfully with tDCS. I am particularly interested in Booster treatment schedules that have worked, but any and all information would be helpful to all of us.[/QUOTE]
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Old 01-12-2012, 04:46 PM #7
ballerina ballerina is offline
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Quote:
Originally Posted by margarsa View Post
I am hoping for some guidelines of treatment protocols ( lead placements) that has any degree of success. Understanding the obvious of if the arm hurts , treat the arm, however the pain is all the skin, head to toe, as in not able to wear any clothes for the last 3 of 4 years. When a touch should be a touch, not a scream.also what about the natural depression that happens with pain syndrome (the origin of injury was a chemical exposure)what is lead placement for depression, insommula,. I am hoping to get started asap, and plan of documentation of treatment and positive and neg results, ect.hopefully the point to reduction of pain and reduction of narcotics. the doctors really try to help with "how about this drug?", however maybe the answer doesn't have to be MORE MEDS......QUOTE=ballerina;839129]I am starting a new thread for folks with CRPS who are treating successfully with tDCS. I am particularly interested in Booster treatment schedules that have worked, but any and all information would be helpful to all of us.
[/QUOTE]

Hi Margarsa,

Glad to hear you are thinking of trying tDCS. Please see the following post to get specifics regarding how to determine protocols for your particular area of pain and diagnosis.

Hope this helps!
http://neurotalk.psychcentral.com/thread160980.html
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Old 01-12-2012, 05:07 PM #8
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Default Be especially careful with placing electrodes near cuts.

During my tDCS treatment last evening I placed one of the electrodes near a cut on my forehead. It did not occur to me that this would be problematic since the electrode was not on the cut.

As a result the area became a bit swollen and I developed a rash. Protocols typically warn agains placing electrodes on cuts or abrasions. Based on my experience be advised that electrodes should be kept away from cuts and abrasions as well.

Hope this helps someone!
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Old 01-12-2012, 05:55 PM #9
margarsa margarsa is offline
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Default Connections help please

Quote:
Originally Posted by ballerina View Post
I am starting a new thread for folks with CRPS who are treating successfully with tDCS. I am particularly interested in Booster treatment schedules that have worked, but any and all information would be helpful to all of us.
Quote:
Originally Posted by ballerina View Post
During my tDCS treatment last evening I placed one of the electrodes near a cut on my forehead. It did not occur to me that this would be problematic since the electrode was not on the cut.

As a result the area became a bit swollen and I developed a rash. Protocols typically warn agains placing electrodes on cuts or abrasions. Based on my experience be advised that electrodes should be kept away from cuts and abrasions as well.

Hope this helps someone!
I got the ActivaDose II machine in from Scrip Hesso. Item number 682 0010
It came with one set of clip type wires.
I got nondisposible electrodes and sponges from Banner therapy products item 55-100. They came today and they need banana type wires to connect them.
I ordered (not arrived) connection wires from a3bs.com part number W53111
They haven't arrived, but they are actually pin type, so they won't work with the electrodes. So my question to you is what are you actually using to go from machine to your electrodes. I think I need to order a pin to banana connectors, but you didn't ' t mention them, I would like to know the details, and also make it easier for the next person to obtain. I found some? At Allied Electronics, but have not ordered them as of yet, I really don't want to waste money for equipment that can not be used.
I want to thank you for your notes on your successes and observations, and appreciate your lead for protocols, I am feeling stressed out , because my daughter just wants to commit suicide than to continue without hope. I am asking for her to give this therapy a chance. So as soon as I collect the tools , the sooner we can start. Thanks, margarsa
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Old 01-12-2012, 06:30 PM #10
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I am confused please help me out. Are the electrodes the clip type? I don't have clip wires. If your unit came with clip wires it is probably due to the usual use for the unit-Ionophoresis which uses clip wires. I really don't know what you mean about ordering a pin. I suggest you call you call Banner Therapy for clarification. I have non clip wires and reusable sponge electrodes-non clip style.

If you don't have any luck pm me and I will call you if you like to speed things along.

The details can be stressful but once you get everything together it will be easy sailing.

Hoping relief is just around the corner for your daughter!!!!!!!!!!
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