Hi ALT-

You are truly beginning to sound as did I when I approached SCS Trial. I had doubts a many, hesitation in the volume of a boat load, and the full realization I did not want to finish my days [for they may be many as I am in my 50s] a prisoner of my bed........ medicated. Thus, I leapt in faith after a lot of prayer, and how happy I am this was the path for me.... not for everyone, of course, but for me.

I pray your situation will demonstrate improvement according to your decisions. Pain is a long hard road, and if you can get away from it, I would be thrilled for you.

Teri, well, she was both a very active oil artist and chef for a restaurant. Long years on the feet had done a number on one, just one of her knees. She had a "simple" knee surgery to correct some damage, and was happy for its result; however, this very surgery precipitated her RSD which spread whole body. She no longer even had knees, and she jokes about having gone from 5'8" to around four feet in height. A healthy sense of humor and an abiding faith she has, each in good measure to cope with her situation.

She gets around via motorized wheel chair, a husband who is so very conscientious for her sake, and a medicaid supplied nurse who spends time each day with her, seeing to her needs. She paints t-shirts with messages of hope for cancer patients in a local hospital and personally delivers the same to the patients. She, like my wife and I, has taken lemons and made lemon pie. She, too, counts blessings, and looks forward to the moment she meets God.

Life is full of challenge, which becomes opportunity, which transmutates into fields of flowers known as blessings,
May you be so blessed my friend,
Mark56

You are tireless in your efforts, and they are many, to bring messages of researched information to others in need, for this IS the place seekers come to find reality in appraisal of methods of approach to their varied situations. You bless others with your efforts to inform, and may you in those efforts feel the rebound of blessings which enrich your soul filled being to overflowing. It is well and truly a full heart which comes from good intentioned delivery of information to assist patients the world over in making more fully informed decisions about their care.

May you never tire from your ministry, and may you be constantly refreshed in the knowledge you are endeavoring to provide help in a world full of needy people as I once was,
Gratefully,
Mark56

Here is the reference you requested. It is probably not new info for the folks on the SCS forum who are avid researchers. If this is the first time on Hooshmand's website please spend so time wandering around it. Lots of helpful tidbits for managing what we all struggle with.http://rsdrx.com/crps_and_scs.htm

Hope this helps.

[QUOTE=ballerina;840627]Hi Alt,

Please do your own extensive research regarding Spinal Cord Stimulators of any kind and CRPS.

Please see below for a start.

http://neurotalk.psychcentral.com/sh...timulator+CRPS



Add CRPSjames to the list of people with CRPS with failed Spinal Cord Stimulators

How did your trial go with the Spinal Cord Stimulator?

Workers comp. did not approve. It has to go before their board or something. I tell you because of my last set of LSB's and the mild winter. I had an oppurtunity to really push my foot and am now off the roll a bout and doing so very better that I am thinking about declining the stimulator for now unless things go down hill again. I appreciate you asking. I'll keep you posted.

So glad you are doing so much better. It is great that you are off the roll about. It may well be a blessing in disguise that WC denied the spinal cord stimulator. I know that several insurance companies are no refusing spinal cord stimulators for CRPS patients due to the high failure and complication rates.

Hope you continue to make great progress. If things take a step in the wrong direction please consider tDCS-non-invasive, cheap and if you are a responder it can be very effective.

Thanks. I have been following the thread somewhat on the TDCS and am up for trying. Will keep you posted.

Nanc Sorry To Hear About You Having as many St Jude Stimulators As I Do But I So Upset With Them I Need To Have Mine Removed But I Wonder If Medtronics Could Help Me Take Over My Current System Or Id The Paddles Would Have To Be Removed And Replace Because They Are Finally Scared Into Place Now And I Need To Do Something About It I Have St JUde Reps In Nashville Tn But They Decided They Want Come To My Area Anymore And Make Any Adjustments So The On One I Had Put In In Late December My Cervical One Has Only Been Programmed With 2 Programs Put In It When I was Leaving My Dr Visit After The One Week Check Up So I Use To Love The Company Now I Hate Them For The Way They Cam Just Change There Ruals And Im Not Driving 6-8 Hours A Day Everytime I Need To Get Some New Programs Or Some Adjusted And Gas Is High It Hurts Me To Drive And Im A Disabeled Veteran And You Think They Could Help But There Is A Local Dr I Know That Does The Medtronics And I May Need To Call Him And See If He has Any Sugestions For Me, This Has Absoultely Made Me Sick At My Stomach

No After 2 of them in me im lookin foward to having them removed especially from unprofessional reps that make up rules as they go so all i can say is no there not worth it as a Disabeled Veteran and sorry support over rules any pain relief