NeuroTalk Support Groups - st. jude stimulator

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - st. jude stimulator (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/163281-st-jude-stimulator.html)

Quote:

Originally Posted by Tony Adams (Post 868526)

Nanc Sorry To Hear About You Having as many St Jude Stimulators As I Do But I So Upset With Them I Need To Have Mine Removed But I Wonder If Medtronics Could Help Me Take Over My Current System Or Id The Paddles Would Have To Be Removed And Replace Because They Are Finally Scared Into Place Now And I Need To Do Something About It I Have St JUde Reps In Nashville Tn But They Decided They Want Come To My Area Anymore And Make Any Adjustments So The On One I Had Put In In Late December My Cervical One Has Only Been Programmed With 2 Programs Put In It When I was Leaving My Dr Visit After The One Week Check Up So I Use To Love The Company Now I Hate Them For The Way They Cam Just Change There Ruals And Im Not Driving 6-8 Hours A Day Everytime I Need To Get Some New Programs Or Some Adjusted And Gas Is High It Hurts Me To Drive And Im A Disabeled Veteran And You Think They Could Help But There Is A Local Dr I Know That Does The Medtronics And I May Need To Call Him And See If He has Any Sugestions For Me, This Has Absoultely Made Me Sick At My Stomach

Hi Tony, so sorry to hear about the difficulties you are having with SJM. It seems like there would be reps closer to you and more willing to help. Have you contacted the company (not the reps) about the refusal of treatment? I guess I am lucky, I have three great reps that cover my area and can program me, if needed, usually within a week. They set me up with many programs on both the cervical and thoracic stimulators...gave me a lot to work with.
I sure hope you can find some relief soon!
Nanc

Luck is not exactly the word I would use

I had an implant in 2008 to treat migraines and it worked for about fifty percent of my specific targeted pain. This year I had the original removed and a new one (the Mini) implanted with paddles in my epidural space to treat neck and limb pain (right arm and shoulder). Last week I had a second surgery to connect new wires to treat the original migraine pain. Now the little battery doesn't seem to be holding a charge and isn't supplying enough power to treat the targeted areas. Please understand I am still recovering from the surgery and the company rep. is going to do her best to change the configuration. If new programs don't work I have to either have a second mini implanted or a larger battery. Wish I would have done my research on the recent problems the company and device is having. My 2008 implant was a life changing event, this year I feel I went backwards...:(

My mother had this device implanted in Brazil, she is visiting in the US and went through a Metal Detector at Marshalls and the device lost its program.
Where could she find someone in MAryland, to reprogram the device. She is in Excruating pain. She has 16 pins on her back, and it is all crooked inside of her, and she needs the device to work properly in order for her to move or walk.

I appreciate any information. Thank you all in advance and Best of luck.

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Quote:

Originally Posted by Danibbastos (Post 1089552)

Your mother should have a medical device implant card for emergency situations that has the contact # on the back. If you call the number then they will be able to direct you to the nearest physician for emergency service. If not I'm sure there is a patient care line via the manufacturer's website.

So sorry your mother is going through this.

Quote:

Originally Posted by alt1268 (Post 840466)

Has anyone had any luck with a st. jude stimulator?

Yest, I have one that has been in for 16 months and it's great

Welcome djones144. :Wave-Hello: