NeuroTalk Support Groups - Is RSD in the tongue possible?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Is RSD in the tongue possible? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/16414-rsd-tongue.html)

This is an old post but my tongue still looks like Lisa's most of the time. I'm embarrassed for people to see it. I have electrical zaps in it just like I do other parts of my body.

If it's RSD it sure doesn't leave anything out after you become full bodied. Last week I was having zaps and pain in my abdomen on the inside. I lay in bed sometimes wondering what the heck is going on with me when these things happen.

Ada

Hi Lisa, I was diagnosed with RSD over 13 years ago. Recently have had to have 6 surgeries to remove my salivary glands in the floor of my mouth and neck. With terrible, unexplained stones. When going in they found my glands were not working and damaged. No idea why. But lately I have been having lots of problems with my tongue and when I saw your photo, That is what my tongue looks like. I often wondered if the rsd would show up there. I am guessing so. Thank you for sharing your picture.

Quote:

Originally Posted by Angeloffire (Post 637150)

Hi, My name is Lisa, I have had RSD/CRPS for almost 11 years. There has been 9 years that Im full body RSD/CRPS. Recently I experienced burning, swelling discoloration as well as ulcer and what seemed to look like I had burned my tongue. I called my dr right away and emailed a pic to his nurse. He did agree with me that this was RSD of the tongue. When I went in to have my blocks done his partner also came in. They examined me and both agrees once again it was RSD of the tongue. My dr then noticed that the pupil in my right eye was bigger than the left. Yes, another issue of RSD I had RSD of the right eye also. It swells gets really red and stays dry. Also as I said the pupil was bigger. THis disease is no doubt a monter. Im going to include a pic of my tongue with this message. You can also see it on Facebook on the RSD research and development page aswell. I pray that you are all having low pain days! My motto is "Fight the Fight"! As long as we fight we all have a chance. Awareness and research is very important in finding treatment and even a possible cure. Soft gentle hugs to you all!

Quote:

Originally Posted by dreambeliever128 (Post 83575)

I know I had RSD pain in my tongue. Never have delt with that. I had it in other areas also but this was weird. I have been chilled all afternoon too. I go from sweating to freezing. I woke up chilled to the bone but I was covered up.

Am I crazy or not?

Ada

You're not crazy at all. I have definitely had it in my tongue, back of my throat too. I have also done the sweating to freezing thing too. So sorry hon. It stinks.