Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-29-2007, 12:56 AM #1
junk4myemail junk4myemail is offline
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Default New and help

I am 28. On my birthday, I injured my knee. Finally after 5 docs one stated I am in the process of getting RSD. Is it a process? Can you catch it in time? I looked it up and am showing all the signs of it. He has me attending water therapy with him and I am not permitted to do exercises (that include my leg) for a couple of weeks, at least until he says so.

I have now had this pain and injury for 4 months. The accident happened Dec. 2. Is there a timeline?? What was your waiting period before finally being told you have it??

I am so confused. I would like to have caught it in time to be able to 1. not have it, or 2. to put it in remission.

But with my symptoms matching the list - does that mean I have it? My leg is colder, sharp shooting pain in knee, sensitive to touch (it hurts sometimes to have my pants rub against it), trouble walking, trouble sleeping, etc.

On top of that, I have been offsetting and now have achilles tendonitis in my left foot/heel. ugg

Fed up with the pain & Confused about the condition,
Christine
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Old 03-29-2007, 01:42 AM #2
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Default get it quick

Is what all the research I have seen says. That way there is a good chance of remission, or maybe even a cure. You are very lucky to learn this is RSD sooo soon, so make sure your getting the treatments needed to curb RSD.

For me it was about three and a half years before someone told me RSD. The vascular surgeon that told me that also told me that it was permanent because I had it sooo long. He said that the other vascular doctors knew fully well that what happened to me would cause RSD, and even if they werent sure of that, for sure nerve damage. It was to late for me to do anything about remission but I could have a go at at least keeping myself comfortable.

So get aggressive while you can.
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Old 03-29-2007, 05:09 AM #3
tayla4me tayla4me is offline
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I was just talking to my Physiotherapist about this the other day. He tells me he is getting up to 3 new CRPS patients per week as apparently the medicos in this area are getting far better at early recognition.
He believes that if he can treat a patient within 3 weeks of onset of symptoms he will almost undoubtedly cure them. He also said that within a 3 month range, the chance of remission or cure is over 60% in his practice.
Having said this, he also said that he has had several patients with long term CRPS whom have also had significant reduction in symptoms as a result of a true multi disciplinary approach which included blocks, ketamine, Mirror Box therapy and graded motor imagery!
I don't know whether he is just being particularly positive and upbeat but from sitting and chatting to his other patients in the waiting room, he seems to be on track.
For me, I think I am a bit "far gone" but I will keep trying
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