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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-03-2012, 12:55 PM | #1 | ||
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I have a nasty complex version of Rsd. The usual muscle wasting etc but also the bonus secondary where the system totally packs up. 3 weeks ago I was nearly gone because all the reactive nerves were destroying themselves faster and faster. I had a miracle 2 weeks where I could actually feel some activity in the body and I even managed to walk for the first time in months. Sadly It's gone away again. Does anyone on here have any experience or knowledge of how to live without a reflex system as I'm 46 and have a nice wife and the medics cant stop this.This is a recent malfunction as I have had standard bodywide Rsd for 17 years. If it helps I was able to contain that type with an exercise programme- basically training all the time.Wishing everyone on here all the best.God bless.
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02-03-2012, 03:20 PM | #2 | |||
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scots ox
sorry to hear you are having such a horrific time with this monster. I have nothing to lend you except my support. But there are other's on here who might. Keep praying! Quote:
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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