Quote:
Originally Posted by catra121
Yeah...no pain, no gain isn't quite how it works with RSD. There's pain alright but it has to be balance properly with rest and should never be pushed beyond what you, the patient, feels is acceptable. So sorry to hear about the brace and everything...yet another thing for me to be thankful for not having to deal with. It seems like such a mess...but it is what it is. Hopefully something will give you the relief you need to eventually get it all under control. New treatments are coming out all the time so I pray you find one that works for you.
Have you read the tDCS thread that ballerina has going about her success with it? It's very inspiring and might be worth discussing with your neurologist...epecially given your lack of relief from the other treatments. Some fo the improvements ballerina has experienced are nothing short of a miracle. I know it doesn't work for everyone (darn this RSD and its complexity) but since it has almost no side effects, is not at all invasive, and it doesn't need to be placed ON the RSD areas (which is HUGE for many people who cannot tolerate anything touching the RSD areas). I'm hoping that I can start doing this treatment soon and that it will only serve to help me get that much closer to having a "normal" life despite the RSD.
|
Neurologist told me he doesn't deal with pain, just the neurological side. Which means the spasms. But he has stuck with me for about a year now. Still calling doctors offices to get into a pain doctor even if I have to pay up front. Have read the tDCS thread here and elsewhere, but the costs are beyond my reach right now. And I still have hoops to go through first, which is the pain doctor and the psychologist and then more therapy and then we see what progress if any is made. Really wanting to try first the delayed release pain meds with therapy and see how that goes. Would love to do the implant with continuous medication release for pain, if there is an alternative to morphine. I am allergic to it.