Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-09-2012, 02:28 PM #1
justwantanswers justwantanswers is offline
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Join Date: Jan 2012
Location: NEPA
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justwantanswers justwantanswers is offline
Junior Member
 
Join Date: Jan 2012
Location: NEPA
Posts: 11
10 yr Member
Default Todays Dr appt confirmed RSD Type I

I posted a few months ago searching for a dr in my area. I have been suffering for 11 months with no answers and the wrong treatment. Finally fed up I returned to the only Dr I trusted, because everyone other one only seemed to be concerned about the money from comp theyd be getting, not my health. Two weeks ago I went back to Geisinger in Danville. I wrote down a list of all the symptoms I experienced since they didnt all start at once but progressed each month. He lookd at it left and came back and said I beleive you have RSD and explained it, referred me to a neurologist and for another mri and bone scan. I went back today for my follow up, and it was confirmed RSD Type I. I am so relieved to finally have the right diagnosis and be able to start the right treatments. I will be starting pain management, and they were talking about nerve blocks. They are going to try a Dr locally but if I dont see relief they want to refer me to Dr Schwartzman. I have done a lot of research since one Dr hadmsuggested RSD but then retractd his statement. Im hoping to get insigt from others and what to expect from different treatments. I understand everyone responds differently but I would like some personal insight.

As much as I am relieved to have an answer, Im so beside myself. Im having a hard time accepting this, more specifically the fact that my life may never be the same as I was a year ago. I lost myself and Im afraid Im going to let this ruin my life.
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