Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-12-2012, 11:53 AM #1
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Default I wanted to say hi.

I have not been on here in a long time. I do facebook and have been busy otherwise.
I moved back into the house Bill and I lived in before he passed. Dustin graduated high school and moved in with me and he is working now. Susan and Travis moved to Buena Vista to get Devin into a better school so I don't get to see him as much. Dustin and Jessica have been going together 4 years and she goes to college and works 2 jobs. They are in and out all of the time so I'm not alone.
Oct. 1st, I was rear ended. A 16 year old hit me and it sounded like an explosion. I went to the ER. It flared up my whole body. I was in so much pain, if I had not went in, I would have ended it. I have spent over 2 months in PT. I also have whiplash. It messed up my thoracic spine, my right hip, my right leg and my back. Some things they got calmed down, others are still going. I'm still down with my back. When they did PT on me, it brought the problem over to the left which Paul was afraid he would but I haven't went back for them to work on me again. My back is the lower left area and it radiates across. I see my PCP Monday to see what he can do for me. I have an Orthopedic Dr. but I haven't made another appt. with him yet due to the distance I have to go. My PCP does more for me then any other Dr. anyway.
I still deal with the pelvic pain. I have gotten my name in on the lawsuit against the mesh they used to tack up my bladder and rectum. I developed even more pain after that was done 4 years ago.
My RSD flares in the bad weather and we have had 10 snows so far this year so needless to say, it stays flared. I try to stay away from meds due to my stomach problems.
I have heard a lot of good about research being done via facebook so I am hopeful they will find a cure or better help for everyone.
I will try to come on more because I still want to learn about things going on and I wanted to say hi to all of the old members and hi to the new ones.

Ada
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AintSoBad (02-13-2012), alt1268 (02-13-2012), birchlake (02-12-2012), Dubious (02-12-2012), kathy d (02-15-2012), olecyn (02-21-2012)

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Old 02-13-2012, 03:13 AM #2
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Nice to see an update from you! :-)

I've been a stranger as well. Life just gets busy, doesn't it? I stay pretty active on my blog, but always forget to check in over here. I'll try to do better.

I hope that you'll be feeling better soon. The weather definitely takes a toll on this disease, doesn't it?
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Old 02-13-2012, 04:01 PM #3
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dreambeliever and Peppermint patty,

Glad to have you back.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 02-13-2012, 04:53 PM #4
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Default Dear Dream believer

I just want to say hello. I am sorry you are experiencing so much pain. I hope some of it can be resolved so you can get back your life. I also want to tell you that the mesh that was used on you, that there is already a pending law suit regarding it. There is a class action lawsuit which you have a limited time to contact them. I was involved with a class action lawsuit for another situation. It was worth my time and effort to become involved. There was restitution made to me, that covered all my expenses. You may want to contact your doctor for the manafactuer of that particular mesh, to see if it is is part of this law suit. I really am sorry that you are suffering. I hope your health can be restored. ginnie
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