[Sandel]

Hi there..

I just wanted to tell you that I too had test results that pointed directly at Lupus as a diagnosis (dec 2005) and I even had and do still at times get rashes on my cheeks.. But we with RSD do sometimes show what my doc calls false negatives in our tests. Try have them retest again after 3 weeks and hopefully it will show a more normal ANA titre.

My titre was 1:160 and aparently only lupus usualy shows that high a number, but I think RSD/CRPS causes the numbers's to fluctuate at times too and can cause the same results. (only my opinion )

Thats what happened to me .. but in that 4 weeks wait time another of WCB's "specialist" diagnosed Lupus as a positive.. then the results came back to make THEIR faces red... ohh ya lol

Trix have you had problems with your organs over the last 10 years?
My sister has has Lupus for the last 25 or so years and she has alot of organ history even alot before being diagnosed is partialy how they finaly found what was wrong with her.

Lupus 25 years ago is like RSD today, a lot of doctors go huh? even now to RSD/CRPS. We need to help fix that.

The sympathetic system (which is outta whack with us) has 3 main purposes:
1) temperature controll.
2) the vascular system.
3) The imune system regulation .

Hope this helps somewhat, I know it is hard to to stress..
Hugs,
Sandra