NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Need Help (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/165629-help.html)

Quote:

Originally Posted by daniella (Post 855972)

I am sorry about your daughter. I have not had issues with meds but when I was at Cleveland Clinic pain program which I was only at for a few days there were people who were. Part of why the program was not for me because a huge emphasis was going off meds,therapy around that etc and I did not face that plus my pain was too high. So I have heard of this being an issue with meds. Obviously with rsd some people need meds to function though extreme use and not under proper doctor care is not good. Is one doctor rx all those meds? Is she under the care of a doctor who deals with rsd and has she looked into other treatment such as ketamine etc? She has been employed as a nurse and on all these meds?
Divorce plus rsd plus change with job/relocation is a lot to face and I agree she needs more support mentally. Can you suggest her seeing someone? Also though I am not clear exactly of her doctors care it sounds like maybe another opinions to look at a different way of treating her. Could you suggest seeing a new pain doctor?

Hi,

A pain doctor has prescribed all these meds. I have talked to my therapist and another therapist in her office is going to see my daughter. I am hoping she will be able to make changes and try other things for pain.

I spoke to my daughter about her pain meds and I am now monitoring them. We are working with the pain doctor to get them where she is in less pain, but not a zombie. She is still in some pain, but is so much more alert and part of the family.

She had blisters that appeared on one of her arms (she has RSD in both of them) and her arm was swollen and discolored. We went to urgent care, ER, our family doctor and finally a dermatologist. The dermatologist finally told us it was from RSD and was from the tremendous amount of swelling in that arm and the fluid needing somewhere to go so blisters start to form. He gave us cortisone and the blisters are doing much better. Her arm is still very swollen. They are doing a nerve block tomorrow in hopes that it will help stop the RSD from progressing. Her contract at her job will end on 3/24 so she will not have insurance after that so they wanted to get the nerve block done ASAP. The dermatologist said since she has tried most of the west medical treatments that we should start researching eastern medicine to see if anything helps there.

Our family doctor is in total agreement in putting her on disability. Thanks for all your postings, they have helped me so much.

Quote:

Originally Posted by terri_3406 (Post 856842)

I am glad that the discussion with your daughter went well and that she is letting you get involved in the process. One thing that you may want to look in to (that is not usually on the list of things doctors think of on their own as treatment for RSD) is tDCS. There's a thread on here where you can read about how much progress one of the board members has had with it and several more who have read it and the success they have had as well. I am only a few days into actual treatments but I think that I am already starting to see some improvements and am very excited about it myself. If the doctor is already recommending you try eastern treatments, then perhaps he would be open to this non invasive treatment with no side effects.

Check out this website for some information. I printed off some of the info and took it into my doctor and she wrote the script for the equipment that I would need.

http://www.transcranialbrainstimulat.../tdcs-for-CRPS

Best of luck to you and your daughter. I sincerely hope that she is able to find relief soon.