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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-29-2012, 07:14 PM | #1 | ||
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Any thoughts or experiences with Dr Nancy Sajben and her use of oral k, low dose naltrexone and dextramethoraphan?
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03-01-2012, 01:48 AM | #2 | |||
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That and unlike some of the more prominent members of the profession (including a particular peacock at UCSD) she doesn't sup at the table of Big Pharma and/or the medical device industry. Based on everything I have heard and read, you would be hard pressed to find a better doctor. Mike
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"Thanks for this!" says: | SandyRI (03-02-2012) |
03-01-2012, 12:24 PM | #3 | ||
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She called me back yesterday and I was quite impressed and agree with you Mike.
I am going to start looking at how to raise the funds for 2 of us to travel to San Diego for three weeks. Her office will file the insurance for reimbursement to you but they are out of network. I am thinking in total, the whole visit should cost about 7k inc hotels. |
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03-04-2012, 06:16 PM | #4 | ||
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bump....
I am really thinking of taking my daughter out to San Diego for 3 wks of treatment with Dr Sajben. Can anyone argue against it? It's a lot of money but her research is pretty compelling. Liz |
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03-04-2012, 11:34 PM | #5 | ||
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I don't think anyone would argue against it; especially if Mike condones it! He has his finger on the pulse of the Medline abstracts and such...Besides, San Diego is nice this time of year!
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05-15-2012, 10:52 PM | #6 | ||
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and I have to say, dr sajben is brilliant! I have never met a doctor so knowledgeable and who actually listens. We have started on the nasal k and build up to the other meds listed on her site www. Painsandiego .com
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05-23-2012, 06:54 PM | #7 | ||
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We have been here now for ten days and my daughter is reporting a seventy percent reduction in her pain. It is Dr Sajbens hope that there will be further reduction as the meds continue to deactivate or turn off the glia. You can find the meds she uses on her site under the long distance patients tab.
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