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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-23-2012, 02:43 PM | #1 | ||
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Junior Member
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Hello
I'm an English man of 41yrs living and working in France for the most part of 9yrs.Well I have not worked since 9 June 2010,that's when I had my accident.I fell 2-3meters and badly sprained my ankle.Well to say the least the french medical system is not great.To start with they put my leg in plaster but 2days later I was back in hospital to have it removed.They said it was not broken and to keep it up for a few days.My old doctor just perscribed me strong painkillers and sleeping tablets,after 6mths he told me there was nothing he could do for me and to go back to work.The doctor for work said he was a fool and to find a new doctor. My new doctor has been great and we've been to one specialist to another but each time no-one could diagnose the problem.Well to say the least we've tried alot but it's like banging your head against the wall.It's hard to stay positive and not get depressed.I've put on alot of weight as I'm not very mobile and as soon as I push myself I end up in pain. My partner has been amazing,for the first year I could not get a shoe on and had to pee in a bucket as I could not move fast enough,now I'm more mobile but she has to put up with my outbursts and rage.Not all the time . Yesterday I was diagnosed by a top ankle specialist withCRPS.I've stopped my medicine and started a new positive attitude,life goes on,but I don't know what treatments to go for as i've lost all respect for the medical profession in France. I'm open to any suggestions and your time is respected. |
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10-23-2012, 03:03 PM | #2 | ||
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Elder
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Welcome to Neuro Talk. Glad you found us. There are alot of people who have CRPS, RSD or some kind of Neuroligical pain. I have a milder form in my left ankle as well. Do you have compounding Pharmacies? I use a lotion, which helps to deaden the pain and burning. It has five ingrediants including Katemine in it. Will gladly post the rest if you want. Do you have doctors called Physiatrists? In my case I found one in Florida. She treats the whole person at a cellular level, and has done more for me that three other physicians. I don't know too much about the medical situation in your country. Your ankle does look very painful and swollen. I do understand you having a temper over it. anytime a person is in pain like that, it is hard to keep your cool and not have a temper. Neuro Talk, can offer some suggestions, and compassion. I hope there can be a resolution for you. ginnie
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"Thanks for this!" says: | ANTHONY JOHN (10-24-2012) |
10-23-2012, 06:50 PM | #3 | |||
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Member
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Welcome to Neurotalk. You found a great forum. We are all friends here so feel free to rant, rave, or just ask or answer questions. We learn from each other.
Most people start off getting blocks (lumbar sympathetic in your case) stay away from cold or cold things such as ice. Look around there is lots of suggestions.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | ANTHONY JOHN (10-25-2012), ginnie (10-23-2012) |
10-23-2012, 08:07 PM | #4 | ||
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Guest
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I'm in the UK and they are no better here, seen 7 specialists including the top 2 and not one had heard of American and dutch papers I talked about.
These might help you cope for the moment. http://www.openfocustraining.co.uk/exercise.html http://www.paintoolkit.org/assets/do...t-Nov-2011.pdf |
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