Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-01-2012, 12:40 PM #1
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
Default Low Dose Naltrexone???

Anyone tell me the dosage and frequency on a scrlpt? I have not one, but two doctors who are willing to write it but are unsure of the dosage.

ARGH....it is so tough to get anything done in the RSD world and I hate being the 'doctor' (which I am not!)

Liz
betsykk is offline   Reply With QuoteReply With Quote

advertisement
Old 03-01-2012, 05:36 PM #2
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
10 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
10 yr Member
Default

Have your doctors contact Dr Chopra from RI his number is 401- 729-4985. He knows all about this treatment and even I am going to start in a couple weeks.

Sam
alaska49 is offline   Reply With QuoteReply With Quote
Old 03-01-2012, 05:39 PM #3
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
Default

Typical dose for CRPS is 4.5 mg between 10:00 pm and 2:00 am
ballerina is offline   Reply With QuoteReply With Quote
Old 03-01-2012, 07:35 PM #4
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
Default

Quote:
Originally Posted by ballerina View Post
Typical dose for CRPS is 4.5 mg between 10:00 pm and 2:00 am
just once a day?
thanks!
liz
betsykk is offline   Reply With QuoteReply With Quote
Old 03-02-2012, 04:12 PM #5
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
Default

Quote:
Originally Posted by betsykk View Post
just once a day?
thanks!
liz
Yes, just at night.
ballerina is offline   Reply With QuoteReply With Quote
Old 03-02-2012, 06:46 PM #6
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
CRPSjames CRPSjames is offline
Junior Member
 
Join Date: Feb 2012
Posts: 94
10 yr Member
Default

I am now taking 4.5 mg. of low dose naltrexone. I also take it before bed. I had some strange dreams in the beginning but now no side effects.
CRPSjames is offline   Reply With QuoteReply With Quote
Old 03-03-2012, 07:49 AM #7
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
Default

James,
How is the LDN working for you? Do you take any other meds along with it?

Liz
betsykk is offline   Reply With QuoteReply With Quote
Old 08-20-2012, 09:39 AM #8
BraveGirl BraveGirl is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
BraveGirl BraveGirl is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
Default Low does naltrexone - experience of those with CRPS using it?

Quote:
Originally Posted by betsykk View Post
James,
How is the LDN working for you? Do you take any other meds along with it?

Liz
Hello - I'm hoping to revive this thread. James, I'm also wondering how you are doing on the naltrexone. Is there anyone else who has tried it for CRPS that can share their experience with it?

Thanks!
Lori
BraveGirl is offline   Reply With QuoteReply With Quote
Old 08-23-2012, 06:42 AM #9
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
betsykk betsykk is offline
Member
 
Join Date: Jan 2011
Posts: 175
10 yr Member
Default

Dr Sajben gave it to my dd back in May at 12.5mg. along with other meds. She is more active than she was before but still has a high pain level.
betsykk is offline   Reply With QuoteReply With Quote
Old 10-23-2012, 08:59 AM #10
Grace and Peace's Avatar
Grace and Peace Grace and Peace is offline
Junior Member
 
Join Date: Jun 2011
Posts: 17
10 yr Member
Grace and Peace Grace and Peace is offline
Junior Member
Grace and Peace's Avatar
 
Join Date: Jun 2011
Posts: 17
10 yr Member
Default Ldn

I have just started on it and would love to chat with others that are using it.


Mara
Grace and Peace is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Low Dose Naltrexone rose_thorn98 Chronic Pain 15 11-24-2011 02:57 AM
Low dose Naltrexone Nicknerd Myasthenia Gravis 4 07-23-2010 11:16 AM
Low dose naltrexone Janet Kelley Myasthenia Gravis 4 02-21-2010 12:46 PM
Low Dose Naltrexone bluedahlia Parkinson's Disease 1 04-05-2009 03:58 PM
Low Dose Naltrexone pjoompa Parkinson's Disease 3 12-05-2008 09:01 AM


All times are GMT -5. The time now is 05:59 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.