Hello everyone,I was thinking of having a golf tournament and dinner at my country club this year in may, or June.I think it could be a great place for us to gather and meet others with this horrible disease.I'm just testing the waters to see if any of this rsd group would be interested.it would be at blue heron pines in new jersey,eggharbor two area,5 minutes from atlanticcity airport .I would love to meet all of you .I think it would be great for all of us.anyway if enough of us are interested in something like this I can take care of all the details.it took 3 years to & 17 drs to finally get diagnosed with rsd.We need more awareness so others don't have to go thru what we have .tell me what you think about this please .thankyou

I look back on this request for a golf tourney get together and realize how stupid it was,back than my rsd wAs manageable .after my rsd going full body ,I can't even get out of bed most days,when I do it's just onto the couch in misery.anyway my apology to all of you for not realizing how bad this disease gets and takes all of our life's away

I couldn't go because full body CRPS and bad balance issues have me using a wheelchair. Unless I used shorter clubs LOL.

thanks for asking anyway danboy. i can barely get out of bed some days too and even when i can its short lived. i use a cane to walk right now and could probably use it to putt the golf balls (lol, just kidding) but seriously i couldn't golf anymore or do anything much these days. just going to the hairdresser yesterday wiped me out. i only go there about once every four months and cancelled three times this month before i was finally feeling up to going. my husband drove me because i haven't driven in almost a year. it really stinks having rsd. i am so sick with pain today and am so dizzy and almost passed out twice. that doesn't usually happen and i'm a little concerned so i am going to stay in bed and keep it low key today. i can barely read because after a few posts my eyes start getting real blurry and my fingers swell after typing just a little. so i will be going back to bed soon but wanted to thank you for thinking of us. maybe we can all have a get together someday just to meet and support each other to help us cope with rsd better. i think that was a great idea you had. take care and hugs to all.

I'm sorry about this post,what I was trying to do was apologize to everyone for the idea of a golf tournament 3 years back when my rsd let me do things here and there not knowing how bad rsd gets.now that my rsd has me disabled and bed riddin .i feel I was insensitive back then and felt I needed to apologize .i didn't realize it was gonna show up again as a new post.anyway I hope you have a nice summer and hopefully get some relief

danboy, please don't be sorry for trying to be kind. though its hard for me to do much anymore i appreciate the fact that you took the time to try to help others with rsd feel less alone. take care and soft hugs.