I am now on the list for the ketamine infusions. I noted that Talya4me has had them. ( I sent you a PM re: them-please check your PM box)
Has anyone else here had them and what was your success.
My pain is aching - not burning. I am told I have fibromyalgia and full body RSD. I saw the "top" RSD Dr. in the county and he said it was full body RSD. However, others say it is a combo. I am confused. Also, I have a terrible reaction to non invasive as well as invasive procedures. An IV in my hand triggered off RSD and Fibro. Also, and epidural in my back has left me with excruciating back pain and disabled. Even a low laser wand, which didn't touch me, triggered off pain for weeks in hands and feet. I could go on and on as many drs. who examined me triggered off pain from touching me-pullin on my fingers and toes. I get trigger point inj. in my face and upper body constantly for this condition. They do seem to help - not completely but tone it down. However, nothing helps my back and also it is in my soles of my feet and ankles and knees. Sometimes my feet do burn but other than that everything else aches. Repetitive motion aggravates it (ex. typing). I'll have to rest my arm now for a few days before doing much more typing, etc.
I am such a high risk for this invasive procedure but am so desperate to get out of this pain and be able to walk again. I am so confused as I don't see the obvious symptoms of RSD. However, the top specialist noted symptoms I was unaware of - drop foot, fingernails being thick , etc. He was very thorough and one of the few who did not touch me and respected my knowledge of my condition.
Any thoughts from the RSD community out there. I read this board constantly trying to learn. I have tried 35 meds. - no help at all. Getting desperate. Did acupuncture, photon therapy, warm pool. Get worse, not better.
Anyone who has had ketamine or any other ideas would be appreciated.
You are all wonderful and I appreciate your support.
Sydney