Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-29-2007, 12:09 AM #1
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Default The move, the VNS and a question?

I had to take a break from moving. My Cronic Fatigue got the best of me. I lasted about 4 days and then I just couldnot do any more. Susan has been helping and a friend but I just had to quit. She shampooed my carpets yesterday and I did do a little packing but not much. We are going to work on it for the next 2 days then they are taking a 2 day vacation with the boys and I am going to rest again. I don't know why the CFS decided to kick up again after me not having it for a couple of years so bad.

I saw my Dr. today and I have my surgery as I had said on the 11th then on the 23 a man from Medtronics is coming down to my Drs. office and spend a couple of hours with us helping him learn how to work it. He's more excited then I am. I think I'm just too tired to be at this point.

I wanted to ask a question about what Cardovascular C1 and C2 means. I saw it on my chart tonight. My Dr. keeps a running list of what the things are we are dealing with at the time. 1 was the RSD, 2 was Fibro, 3 was the IC and so on. I call it the top 10 chart. I saw that but I have no ideal what it is. Can any of you help me with any info on it. I know it might not be enough info to figure it out but I was just interested in what it is.

My RSD keeps wanting to come out in my foot and arm so I am trying to rest off and on between the move for that too. As I said I have had some wierd pain here lately such as in my tongue and it feels like the RSD pain. He checked me out tonight and he said everything seems to be ok otherwise with my mouth so I know it's nothing else going on in it.

Thanks for the help.
Ada
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Old 03-29-2007, 04:48 PM #2
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Default Ada

Do you have a link to any information on the VNS? I am trying to find out if it is approved for use in Canada. Any links you could give me would be a big help.
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Old 03-30-2007, 01:04 AM #3
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[Cardovascular C1 and C2]

I've only seen C1 C2 as in the c spine at the top-

but there is the vertebral artery that runs down the spine & it can get pinched/affected.

http://www.meddean.luc.edu/lumen/med...on/vertbas.htm
http://images.google.com/imgres?imgu...%3Den%26sa%3DN
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Old 03-30-2007, 12:00 PM #4
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This was posted on the Health News Headlines forum-

VNS For Treatment Resistant Depression
http://neurotalk.psychcentral.com/sh...15&postcount=1
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Old 03-30-2007, 08:41 PM #5
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Default Hi Trix,

If you go over to the depression forum, I wrote on there about the VNS and on that thread I put a toll free no. and a woman that works there named Kathy and she helps people get it ok'd thru the company. I can't say for sure Canada is included but she will give you info wheather or not it is.

If you can't find it I will get it for you. Let me know.

I have been moving and putting things away for days. I finally got to sat down. I am at my new place now with everything hooked up but unfortunetly not everything is over here but we are seeing the end. Lots of help.

Ada
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