Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-18-2012, 09:07 PM #11
Lisa in Ohio Lisa in Ohio is offline
Member
 
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
10 yr Member
Lisa in Ohio Lisa in Ohio is offline
Member
 
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
10 yr Member
Default

Alisha, do you have a family doctor who could help you out? Maybe not with the replacement of the pain meds, but with the withdrawal symptoms. If money is an issue (and when is it not with this disease) your family doctor may even have samples. Keep hanging in there girl, you will make it. Blessings, Lisa
Lisa in Ohio is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (03-20-2012)

advertisement
Old 03-19-2012, 06:08 AM #12
yiisd yiisd is offline
Junior Member
 
Join Date: Aug 2009
Location: Texas USA
Posts: 49
10 yr Member
yiisd yiisd is offline
Junior Member
 
Join Date: Aug 2009
Location: Texas USA
Posts: 49
10 yr Member
Exclamation

Quote:
Originally Posted by ginnie View Post
Hi Cindi, I would have to do alot more research into this Kratom. I would not recommend it to anyone, unless a doctor OK's it. Not meant for human consumption is quite a statement to be taken seriously. There is this stuff called Bullet, that cautions the same thing, not meant for human intake. If this was just an aroma, that would be different. I would ask Doc Smith about this. ginnie
I have had RSD for ten years. I have quit A rather high dosage of Morphine, both the Long Acting & the Immediate Release 3 times in 10 years. Each time I quit Cold Turkey & was totally off Morphine and any narcotics for about 12 months. Each time I began again as Post- Surgical Care. I tried a 4th time, but this time I used Kratom.
In my opinion, I would go cold turkey ANY DAY before I took a single Kratom. I did much research & spoke to many who "Loved It". I guess if you like feeling "High" and "Stoned" all the time, then yes, Kratom may be for you, but I personally don't take the Opiates for a "stoned" feeling AND I never feel "High" from the Morphine Long Acting.
I agree with you - just because it is from "Nature" it is ok. Well, where do people think Heroin originates ... Poppy - Nature.
My advice, based on MY personal experience is that Kratom is much more of a "drug" that people would become mentally dependent on simply for the "High". I am no light-weight when it comes to drug tolerance, like I've said, I've taken Morphine and Fentanyl for years, off & on. I will NEVER touch Kratom again.
That is my personal experience, and your advice to Check it Out Thoroughly is Great Advice; however some like that "High" Feeling. I don't. I just want my pain to go away.
I Agree with your advice 100% - but even then it may not be what is best for each individual.
yiisd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (03-20-2012)
Old 03-19-2012, 06:52 AM #13
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 28,457
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,457
15 yr Member
Lightbulb

Quote:
Originally Posted by ginnie View Post
..... I would ask Doc Smith about this. ginnie
Just an FYI that, as noted in his signature, the member here with user name Dr. Smith is *not* a medical or any other kind of doctor, but the member chose that user name from a character in the TV series "Lost In Space"
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
finz (03-24-2012), ginnie (03-20-2012)
Old 03-19-2012, 10:31 AM #14
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

Actually, switching from 30mg to 20mg of Kadian might not be fun, but you shouldn't go through withdrawals IMO. Just push the time forward as many hours as possible every day to make up the missing days. I believe grapefruit juice will intensify the effects of morphine, so you might want to see if that could help you...

If you're nose starts running for no reason, then you're in withdrawal, btw.

My pain contract states meds will only be replaced if a police report is made. If this is the 1st time this has happened and you're a long term patient, this seems a little hard core.
LIT LOVE is offline   Reply With QuoteReply With Quote
Old 03-23-2012, 10:39 PM #15
AlishaE AlishaE is offline
Junior Member
 
Join Date: Nov 2010
Posts: 15
10 yr Member
AlishaE AlishaE is offline
Junior Member
 
Join Date: Nov 2010
Posts: 15
10 yr Member
Default

Thanks to everyone for your advise & help. My PM doctor and I did speak a few days later and she ended up replacing my medication.
As many of you said may happen I have been going through a very bad flare this week that actually started 5 days after I was back on my regular doses.
This whole experience really opened my eyes about physical dependency on narcotics and am trying to form some type of long term plan to be done with them - more PT, behavorial therapy, alternative therapy, etc.
I am definitely taking more precautions about where my meds are kept now!
AlishaE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (03-25-2012), ginnie (03-24-2012)
Old 03-24-2012, 02:02 AM #16
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

I'm glad that you have gotten support from your doctor now, Alisha.

Do you know who the culprit was ? I would talk to the police and let them know what has happened.
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (03-24-2012)
Old 03-24-2012, 03:33 AM #17
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
Default

Quote:
Originally Posted by AlishaE View Post
Thanks to everyone for your advise & help. My PM doctor and I did speak a few days later and she ended up replacing my medication.
As many of you said may happen I have been going through a very bad flare this week that actually started 5 days after I was back on my regular doses.
This whole experience really opened my eyes about physical dependency on narcotics and am trying to form some type of long term plan to be done with them - more PT, behavorial therapy, alternative therapy, etc.
I am definitely taking more precautions about where my meds are kept now!
This has happened to me. It was a cleaning lady from "Merry Maids". She took eveything, thankfully for me at the time I had almost a week supply in my purse in a mon-sun organizer. But I still had to get the police involved and my doctor at the time was very understanding, I was his patient for almost 3 years at the time. It all worked out but I s...when it happened. But it also changed my perspective on narcotic medications. It has taken me a long time but currently on almost nothing and only see a PM doctor every 3 months if even that.

2 things I was told by 1 my doctor "lock all of this up" , 2(from the police) "watch who you let in your house. a person without any 2 front teeth is a big red flag." Appearently persons who do crack lose there front teeth because of smoking to much crack.

Glad it worked out.

Gabbycakes
gabbycakes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (03-24-2012)
Reply

Tags
theft, withdrawal


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Posted in chronic pain also. Help! New pain meds making me sick! cath1 Spinal Disorders & Back Pain 62 02-10-2012 10:56 AM
pain meds for headache or migraine meds? wtrpk Traumatic Brain Injury and Post Concussion Syndrome 5 09-06-2011 02:26 PM
new report on pain meds cost for pump vs meds lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 2 02-10-2010 08:18 AM
new report on pain meds cost for pump vs meds lostmary SCS & Pain Pumps 0 02-09-2010 07:33 PM
Need Evidence That Pain Meds WILL work for MS Pain Miranda Arden Multiple Sclerosis 10 11-14-2007 11:11 AM


All times are GMT -5. The time now is 07:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.