Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-18-2012, 05:51 AM #11
hurting hurting is offline
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hurting hurting is offline
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Mig13 sorry that you have CRPS and hope you can get it under control.

Now you need to hire a ATTORNEY ASAP! You work in a hospital of all places and cannot afford to wait and educate yourself about the law. The hospital knows everything about the laws and you need someone on your side that is as well educated and knows more about all the law in your state working for you. AEEOC attorney will protect you and your benefits. You cannot afford to do this on your own because the hospital is not going to wait on you to know the law. They will have the upper hand and you will be out the door so fast.

I hate to tell you this but as fast as this has hit you and has already spread in 6 months from now it my be the same or the pain will be unbearable and have spread even more. You cannot add stress to what you are dealing with. The stress will make your crps worst so this is another reason why you need a attorney fighting for you.

I read your post a few days ago on my 5th year of living with crps type II after having surgery to my right thumb joint at the base. For 20 months after the surgery I was living with burning numbing pain on the top of my hand and wrist. I went to a new doctor that tried many things with know luck and finally told me that all he could do is surgery to see what was causing all my problems. I showed him on my upper inside wrist 3" to 3.5" above where my thumb surgery was done 21 months earlier.

He told me up front that he would try this but this would be it if I need anything else done I would have to see someone else. Once he opened my upper wrist he found to his surprise my radial nerve had been severed. He clean the two ends and put in a 1" graft. After the surgery on my first follow up he told me it would take up to 2 years for the nerve to heal.

6 months had passed and the pain is now from my elbow down into my hand at a 10+. I found a fantastic Doctor she spent a lot of time with me on my first visit going over what she found. During this visit she said that I showed all the signs of RSD. I went back for several test EMG, Ultrasound, MRI.

On my third visit she went over her findings. I had muscle wasting in my arm & hand, carpel tunnel, and the joint that was used I had issues with. She wanted to do surgery but was afraid because of the RSD. So she sent me to a pain dr. to explain the RSD to me before going ahead with the surgery so I would have a clear understanding of what I had and how bad it can get. The pain dr. told me that I had CRPS and it was type II. He said RSD is the old name. Now he told that CRPS II is from nerve damage and if treated early within the first 3 months I could have had minimal pain and damage. But I was put off for 20 months by the dr. that did the first surgery and I am at the point of no return.

I had the second surgery to fix the radial nerve. They gave me a block in the arm pit to kill all 3 nerves which hurt like hell when first injecting before numbing. The Dr. found that the first surgery to fix the radial nerve had not worked and did not regrow a milometer let a loan the inch that needed to grow. She cut back the nerve and put in a 3" graft, replaced the joint, and did the carpel tunnel.

It is 27 months after the last surgery and the radial nerve has not regrown and my never but I cannot have an other surgery done to this nerve.

Here is were I am at today. I have CRPS II in my whole right arm, hand, wrist, upper back, chest, neck, head, leg, foot, hip and now lower right back. Most of the spreading comes from injections from blocks. The pain dr. will not listen and just keeps making me worst by do blocks. I am trying to fine a new pain dr. that will listen before acting. I am now getting it in my left leg, & hip as well as my upper left arm.

I cannot be in A/C at all and take any vibrations from sounds dogs barking or riding in a vehicle.

I hope you don't end up this way but the first thing to do is get a attorney. You don't work at a bank were you would not be of any liability to them. You work of all places a hospital where you are a Major liability to them. It would be very hard to fight them with all the Drs. they could get to back them up against you. You are a tinny fish in a huge sea of sharks. They will smile and act as a friend to you while getting what they need to protect them from you before letting you go.

At lease before you say anything to HR talk to a attorney to see what rights you have and if it is wise for you to do things on your own. I am like most folks out there I like attorney's as much as I like having CRPS II.

Also do not talk to anyone at work coworkers.

Sorry for the long version its the meds.

GOOD LUCK & keep us in the loop

Hurting
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Old 03-19-2012, 12:08 AM #12
Mjg13 Mjg13 is offline
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I am sooooo sorry and I get it. It s so unreal. We re one way and boom another, but sadly it's not like a car wreck and we are immediately faced with broken bones, etc. to me it's a slow death of what we were to the reality of what we ve become. I go to bed every night thinking I'll wake up and be ok, bad nightmare. I'll have a day like today where I feel half human and think it s all up from here and then I'll be set back a week in pain from the hope. If you need an ear or shoulder, friend me . . . I'm a great listener, great at advice just not for myself. I wish you the best.
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Stuck in the awful place of in between. 1st rib resection 2/2011 for venous tos which caused crps of upper right body. 1/24/2012 multi level laminectomies to remove t9 meningioma; cervical cancer survivor dx in 2006 with two recurrences. I am 39.
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