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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Must vent about the RSD (Only diagnosed 2 months ago) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/166618-vent-rsd-diagnosed-2-months-ago.html)

Breaker814 03-19-2012 02:44 PM

Quote:

Originally Posted by ballerina (Post 862230)
Breaker, since you are so newly diagnosed, please consider a trial of tDCS. tDCS addresses the root cause of CRPS, is non-invasive may be used in conjunction with other treatments, and doesn't just mask the pain like patches.

Thanks Ballerina, Who do I go to, to look into this treatment? thanks

ballerina 03-19-2012 04:46 PM

Quote:

Originally Posted by Breaker814 (Post 862296)
Thanks Ballerina, Who do I go to, to look into this treatment? thanks

I suggest you read the tDCS thread. It has lots of info. Bottom line, if you are considering getting a consultation re tDCS James Fugedy in Atlanta is the top person in the US. There are other options for treatment listed in the thread.

LIT LOVE 03-19-2012 08:39 PM

Quote:

Originally Posted by ballerina (Post 862230)
Breaker, since you are so newly diagnosed, please consider a trial of tDCS. tDCS addresses the root cause of CRPS, is non-invasive may be used in conjunction with other treatments, and doesn't just mask the pain like patches.

Lidoderm patches can be a very effective tool in preventing spread when used properly.

ballerina 03-19-2012 09:01 PM

Quote:

Originally Posted by ballerina (Post 862346)
I suggest you read the tDCS thread. It has lots of info. Bottom line, if you are considering getting a consultation re tDCS James Fugedy in Atlanta is the top person in the US. There are other options for treatment listed in the thread.

I see you live in NY. Don't know how close you are to New york City but Helena Knotkova has been doing tDCS research there for years. Not everyone responds to tDCS but if you do you will be less likely to rely on meds and patches long term.

Additionally you might want to consider other treatments that deal with brain plasticity such as mirror therapy. A physical therapist who is knowledgable about CRPS can help you with this treatment.

Hope this helps!

Breaker814 03-23-2012 10:30 PM

Thanks everyone for helping me. I really appreciate it since it really is a scary time for me.

Giving a little update. I finally got the approval from the workers compensation for my back. My back is really bad, its in the lower right side. And when you touch it lightly it really hurts, I asked my sister to check my back to see if theres any Marks like the ones on my leg and she told me she saw one. So Im really starting to believe that the RSD did spread to my back. I made the MRI appointment for Friday. So wish me luck on that.

My sleeping patters have been Horrible, I slept 3 hrs one night and i seen to keep waking up in middle of night in pain. One night was so bad that I felt like my whole Right side of my back had the Tingling, Fall asleep feeling. And honestly, before I felt like its starting to go into my Arm. Has this happened to anyone. I don't want to think worse case that it has completely spread within 3 months. Any advice? I changed my Anti-inflammatory and the Pain mgmt doctor doesnt want to do any other treatment until they clear my back for a Pinch nerve, disc disease or hernated Disc.

OH one night I tried using the LIDODERm patch on my back and Honestly I think it brought on the RSD cause Once I pulled it off the Rsd simmered. Ughhh so stressful.:mad:

catra121 03-24-2012 06:56 AM

It's good news that they approved your back and hopefully when you get the MRI you will know more. I am so sorry to hear what you are dealing with but hang in there. You are still early on in this thing and have a good chance at getting relief and possibly remission.

Sorry the lidoderm patches didn't work...everyone's different in terms of what helps. Another option might be to use a lidocaine cream or voltaren gel (which is an anti-inflammatory) and that might help. I also find that those stick on heating patches help sometimes too...but not everyone gets the same relief from heat. It's a lot of trial and error unfortunately but I hope you find something soon that helps.

ballerina 03-24-2012 07:48 AM

Quote:

Originally Posted by Breaker814 (Post 863503)
Thanks everyone for helping me. I really appreciate it since it really is a scary time for me.

Giving a little update. I finally got the approval from the workers compensation for my back. My back is really bad, its in the lower right side. And when you touch it lightly it really hurts, I asked my sister to check my back to see if theres any Marks like the ones on my leg and she told me she saw one. So Im really starting to believe that the RSD did spread to my back. I made the MRI appointment for Friday. So wish me luck on that.

My sleeping patters have been Horrible, I slept 3 hrs one night and i seen to keep waking up in middle of night in pain. One night was so bad that I felt like my whole Right side of my back had the Tingling, Fall asleep feeling. And honestly, before I felt like its starting to go into my Arm. Has this happened to anyone. I don't want to think worse case that it has completely spread within 3 months. Any advice? I changed my Anti-inflammatory and the Pain mgmt doctor doesnt want to do any other treatment until they clear my back for a Pinch nerve, disc disease or hernated Disc.

OH one night I tried using the LIDODERm patch on my back and Honestly I think it brought on the RSD cause Once I pulled it off the Rsd simmered. Ughhh so stressful.:mad:

Lododerm patches caused a severe spread for me. Catra is so right, it does take lots of trial and error. I can see why your doctor wants to rule out other issues with you back but maybe he needs to be addressing your sleep issues which are clearly related to CRPS. It is so much easier to cope when you can sleep.


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