[cinders999]

Hi, how's everyone? I've not been on the forum for a while, so I've lost track of how everyone is doing (I've also lost where I was up to with the threads)

I recently had a few bad falls just a couple of days apart so I've not felt like doing much on line. When I saw my physiotherapist a couple of days ago, she made me even worse. Between the falls & her trying to force my foot straight, poking & prodding, & generally doing everything to my leg she shouldn't, I'm now in a huge flare up, the only thing I could think to do was to come on here & see if anyone had anything nice going on, thought it might cheer me up a little better than banging my head off the walls, literally!

[alt1268]

Cinders,

Sorry to hear about your falls and that fact that your in a flare. I have been doing fairly well. I am walking around and eating much better. (off the roll a bout) I have weaned off my neurontin even. Nights are still alittle rough and I still nap during the day. But things have been well.

[cinders999]

Originally Posted by alt1268

Cinders,

Sorry to hear about your falls and that fact that your in a flare. I have been doing fairly well. I am walking around and eating much better. (off the roll a bout) I have weaned off my neurontin even. Nights are still alittle rough and I still nap during the day. But things have been well.

That is great news, you must be so pleased with yourself getting off the neurontin & walking about. It's so lovely to hear any good news when your down to you for managing.

[catra121]

Very sorry to hear about your falls and the flare up from therapy. It's a real fine line between pushing yourself what you need to do with therapy and doing more than you should and it doesn't sound like your therapist understands this. Sometimes they seem to be in such a rush to make us better that they don't realize they are only making us worse.

I have been doing better. The warm weather has been excellent and I have been taking advantage of it. My treatments with tDCS seem to be getting better and I have been able to go for walks at the local forest preserve with my dog. Still need to use the walker but feel much stronger and generally healthier. The pain and allydonia in my my hands and arms has been reduced with the new protocol I am using with the tDCS which is very encouraging. I can only hope things continue to move in a positive direction.

Take care of yourself and definitely have a talk with that therapist of yours to make sure she doesn't do that to you again. You need to push and do as much as you can but forcing you to do things that you are not up to yet will just make things worse and cause a setback. Sending good thoughts your way and hope you feel better soon.

[cinders999]

Originally Posted by catra121

Very sorry to hear about your falls and the flare up from therapy. It's a real fine line between pushing yourself what you need to do with therapy and doing more than you should and it doesn't sound like your therapist understands this. Sometimes they seem to be in such a rush to make us better that they don't realize they are only making us worse.

I have been doing better. The warm weather has been excellent and I have been taking advantage of it. My treatments with tDCS seem to be getting better and I have been able to go for walks at the local forest preserve with my dog. Still need to use the walker but feel much stronger and generally healthier. The pain and allydonia in my my hands and arms has been reduced with the new protocol I am using with the tDCS which is very encouraging. I can only hope things continue to move in a positive direction.

Take care of yourself and definitely have a talk with that therapist of yours to make sure she doesn't do that to you again. You need to push and do as much as you can but forcing you to do things that you are not up to yet will just make things worse and cause a setback. Sending good thoughts your way and hope you feel better soon.

Sounds lovely to be able to go out & walk your dog, that's the one thing that's keeping me going, that soon I'll be able to take my dog for a walk rather than stumbling along beside my daughter while she walks him. What sort of a dog do you have? I'm so pleased to hear the tDCS is working so well for you, you must be so thrilled with it. As to my therapist, well she doesn't know much about RSD, we have so few cases in the UK, that we are sadly far behind in knowledgeable medical persons here. She's one of those 'bossy know it all's that won't listen'. Unfortunately she's the best there is any where near me I'm seeing an occupational therapist in a week, maybe he'll be better.... Well he CAN'T be any worse

[catra121]

Originally Posted by cinders999

Sounds lovely to be able to go out & walk your dog, that's the one thing that's keeping me going, that soon I'll be able to take my dog for a walk rather than stumbling along beside my daughter while she walks him. What sort of a dog do you have? I'm so pleased to hear the tDCS is working so well for you, you must be so thrilled with it. As to my therapist, well she doesn't know much about RSD, we have so few cases in the UK, that we are sadly far behind in knowledgeable medical persons here. She's one of those 'bossy know it all's that won't listen'. Unfortunately she's the best there is any where near me I'm seeing an occupational therapist in a week, maybe he'll be better.... Well he CAN'T be any worse

I have a 5lb teacup poodle. She's 14 now and is pretty tame so in that sense she's easy to walk...no pulling or running off. She's afraid of her own shadow so I never have to worry about her running away with me (not that she really could at her size). But walking the paths at the forest preserve is easier for me because there aren't a lot of sidewalks by my house and there can be a bit of traffic. It takes some coordination to use the leash while also holding on to the walker and I just worry that I will mess something up and either she or I will get hit by a car. Slim chances of that happening but all it would take is one time where I drop the leash, she gets startles and jumps into the street and then I try to grab her. Okay...so maybe I have thought way to much about this...but even if I am just crazy I do feel better walking along the path at the forest preserve. Although yesterday she barked at a goose and I was like, "And what do you think you're going to do? They're bigger than you." She's such a little goof ball sometimes and is only "brave" enough to bark when she's on the leash and can hide behind me.