Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-26-2012, 03:06 PM #1
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Heart RSD and Topiramate

I've had severe pain in my foot since Feb 3. Passed from Dr to Dr. Test after test. Drug after drug. No luck. Lots of frustration and tears. Finally I was started on a seven week progression of Topiramate. 25mg. Each week I take one more pill.

Shockingly to me, the pain is easing. This started at the end of week one. Now in week two, the redness in my toes is going away. I am no longer snapping at my poor husband.

I looked up the drug and found it was for epilepsy. This I don't understand. But I'll take it!

One downside is that I am very sleepy. I hope that as I adjust to this med I will not be as sleepy.

I wanted to post this because I have posted my sadness and pain many times. I wanted to share this little bit of happiness with you.

I hope every one of you find a pill that works for you like this is working for me. (at least it's working right now)
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Old 06-26-2012, 03:37 PM #2
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Quote:
Originally Posted by egglet View Post
I've had severe pain in my foot since Feb 3. Passed from Dr to Dr. Test after test. Drug after drug. No luck. Lots of frustration and tears. Finally I was started on a seven week progression of Topiramate. 25mg. Each week I take one more pill.

Shockingly to me, the pain is easing. This started at the end of week one. Now in week two, the redness in my toes is going away. I am no longer snapping at my poor husband.

I looked up the drug and found it was for epilepsy. This I don't understand. But I'll take it!

One downside is that I am very sleepy. I hope that as I adjust to this med I will not be as sleepy.

I wanted to post this because I have posted my sadness and pain many times. I wanted to share this little bit of happiness with you.

I hope every one of you find a pill that works for you like this is working for me. (at least it's working right now)
Congratulations! I've heard of epilepsy meds used in Europe for RSD. Congratulations to your husband also!!
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Old 06-26-2012, 08:44 PM #3
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So happy that you are getting relief, that is awesome news!!

I took Topamax (Topiramate is the generic) for years for migraine prevention and it did a great job in drastically reducing them. Unfortunately it did not help my RSD at all. Everyone is different though! I did not sleep well so my doctor had me take the entire dose before bedtime, it helped with sleeping and I wasn't so tired in the morning. Another tip, in case you have the tingling hands/feet from it, is to eat a kiwi a day (or something high in potassium). The dr gave me that advice and boy did it help. It eventually stops, but that helped!!

Hope you continue to get relief!
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Old 06-28-2012, 11:51 PM #4
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Congratulations! I've heard of epilepsy meds used in Europe for RSD. Congratulations to your husband also!!
neurontin is an epilepsy drug, lyrics as well.. they are nerve thickening drugs .. meant tp slow impulses through the nervous system.. this is why the use it on chronic pain patients.. and why they cause drowsiness and uncontrollable sleep episodes.... just though it might be useful to know..
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Old 06-29-2012, 03:02 PM #5
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neurontin is an epilepsy drug, lyrics as well.. they are nerve thickening drugs .. meant tp slow impulses through the nervous system.. this is why the use it on chronic pain patients.. and why they cause drowsiness and uncontrollable sleep episodes.... just though it might be useful to know..
I didn't know Lyrica was a drug made for epilepsy. I thought it was first developed as a drug for severe depression, psychopathic kind of drug then used for chronic pain.
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