[frogga]

Hi all,

I know I'm quiet at the mo, I'm RSDed out at the moment.

However, a friend emailed me these as suggestions and it's really helpful... I find that I have to lie flat in bed because of my neck/ spine (and amazing ability to be spastic and fall out of bed when my spasms kick in).

I tried this resting position and found that it did help me.. so thought I'd share

http://www.trevwilliams.co.uk/metips/home.html

(she sends me lots of tips from Severe ME websites - because in many ways (NOT ALL!!) it is sort of like RSD (severe pain and fatigue and nobody having a clue what is going on). Well, at least in my case.

Love Fed up Frogga xxxxxxxxx

PS - also have (at home) a heated waterbed! so nice to get back to it (jealous anyone? mum does whinge about heating bills though cos constantly have it on about 30 degrees).....