[6kiddos]

I was diagnosed with RSD in both feet (started with plantar fasciitis in my right foot and spread to the left before they figured it out) in May 2011. I had 6 lsb's and they helped with a lot of the burning and sensitivity (though I still get it but just not as often and not as bad). I still have a lot of pain. Last August I started having a lot of pain in my ankles. Then in November I started with lower back (though I do have issues there but never like this) and hips. This pain is terrible in the morning and gets better during the day. In January it started in my fingers and hands. I wake and it is quite painful to bend my fingers...and this lasts all the time though not as bad as first thing in the morning. (I have a hard time opening jars, it hurts to play the piano, etc). I also noticed this bump on my thumb joint at this time. Just last week, it started in my shoulders, elbows and wrists.

So...the joint pain is spreading to all my joints. From my research, it would almost seem like a rheumatoid arthritis type of thing (though I was negative for this last year when they were ruling everything out before the RSD diagnosis). My mother has terrible arthritis, they don't know what kind she has..she stumps the dr.'s at UW. They call her an anomaly.

Is this type of joint pain normal for RSD?? Or is this possibly something else? I just feel like my body is falling apart. I am only 38 and I have 6 kids to take care of.

On top of this stuff, I need a root canal done on a tooth (out of the blue it started to hurt??), my wisdom tooth needs to come out (root is eroding away for no reason), I got my first ticket, my dearest friend is moving, money is VERY tight and I have to figure out how to pay for medical & dental, and the list goes on and on.

Thanks for the input on the joints.

J

Sorry for getting side tracked.

[Happygeek]

Hi there
My CRPS is in my neck, left arm, and left hand....but ALL my joints are sore and stiff, especially in the morning. My ankles lock up during the night and I usually am shuffling around when I wake up for about an hour or so. I have been tested several times for RA (once at my diagnoses of crps-3yrs ago and again about 4 months ago) and have come up negative. I have heard that fibromyalgia can also be present in people with crps. ( isn't that nice!). I have also woken up with my hands feeling like clubs...both, not just my crps side. It all just freaks me out so much...sometimes I feel like I just can't take one more source of pain.

I think that there is no such thing as " normal" or "typical" with RSD/CRPS

Good luck to you and I hope you find some relief from your pain

[pacman]

I am so glad I joined this forum. I was diagnosed with CRPS several weeks ago after suffering since last March 2011 . I originally had it in my left foot due to an ingrowing toe nail in my right foot and both feet blew up out of all recognition . I have had sever back traumas for over 20 years and lived in constant pain . since I was diagnosed I have been getting Pain in my elbows and forearms and then my hands swelled up and my palms were shiny and red and now I find it difficult to pick a cup of coffee up or open a jar or use my crutches. So after reading your post and the other I presume CRPS can spread . Good luck to you all I will be asking my doc about it but don't live in hope (not any more) I know how you feel It does make you suicidal.

[6kiddos]

Happy - I have been working on lowering my dosage of lyrics to see if it is causing the joint pain. I don't think it is...and my dr. just told me to go back up in dosage since I am having more pain/burning, etc at the lower dosage. =( As for the joint pain...we will see. I dread going to bed at night. It does seem that the weather makes it worse. We went to a cabin over spring break and it snowed while we were there...OH MY! I just wanted to curl up and die! I can take pain, but to keep adding to it?! ugh. Anyway, I have been tested last year for RA and was negative, BUT it is possible to be sero-negative RA. I am seeing a rheumatologist the end of the month to see what she has to say. Hang in there. Hope today is an ok day.

J