Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-29-2012, 05:59 PM #1
Jessicav21 Jessicav21 is offline
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Angry My RSD has spread

My RSD has now spread to my right shoulder what should I do now?
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Old 04-29-2012, 06:13 PM #2
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Treat it as aggressively as you can as quickly as you can.

My RSD spread last year and treatment got delayed because of doctors bouncing me around from one to the next while it just continued to spread until it was in my whole upper body. Don't let them delay on this.

I don't know what sorts of treatment you have done or are doing but you definitely should be doing something. Definitely make sure you keep moving it and don't immobilize or fall into any of those bad traps that many of us do when we are trying to get a diagnosis the first time around with RSD.

Have you considered tDCS? There's a thread on here about it and several have had wonderful success in treating the areas of spread with this treatment. I am only a couple months into treatment but I have already seen some excellent improvement in the last areas that my RSD spread to and hopefully with time I will see it in the other areas as well.

I hope you find something that helps and that it does not spread any further. Definitely fight to get treatment and don't let the doctors delay if at all possible.
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Old 04-29-2012, 07:01 PM #3
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The first thing I do is use Lidoderm patches. I take extra pain meds, and take hot baths with Epsom Salts twice a day if needed, have massage therapy with highly skilled therapists (don't wait till you're desperate to find a good one!) If it continues past a week or is obviously serious, then I start a course of steroids. I've managed to fight off spread this way. Prior to working out a combo that worked for me, I had areas that were beginning to get as bad as my original injury site. It took a combination of HBOT, warm water therapy, massage, meds, Lidoderm patches, and sessions in an infrared sauna to get a minor (untreated) ankle sprain back to normal. --It got worse very slowly and compared to my original RSD site, was so insignificant, it was easy to ignore for a long time. I've learned it's better to be cautious and never expect my body to react normally anymore. And I never need to run to the ER, either. I always have what I need on hand. If I ever find these things not working for me, I'd try and have a block done asap, or a Ketamine infusion--both of which I respond well to, at least for short periods of time.

The main thing is for you to figure out what calms your pain down, as well as having a doc that is committed to your treatment and that will give you TIME.
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