Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-22-2012, 03:22 AM #1
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Question Blatant disregard for pain in the face of extreme Anger and Despair...

Hi All,

This is my first post or contact with any others living with CRPS -- ever.

I was wondering if any of you suffer from the same moronic affliction that I do. That is, when you get exceedingly angry, frustrated, fed-up, do you do something that you know damn well will aggravate your CRPS? I don't know what to liken it to, perhaps a child acting out even though they know the consequences.

I've been dealing with CRPS for 3.5 years. My doctors remark that the only way I've been able to do so "well" is because I've been looking at it from an academic perspective. That is, I've never seen the point of the "Whoa is me" "Why me?" schtick. If I have an incurable disease, it is what it is and I can only choose to move forward with the treatments that make life bearable--however brutal they may be.

However, in those years of calm, a few times I've snapped. Almost a self-sabotage of sorts. The mindset of "I'm going to hurt anyway, so it might as well be on my own terms for once" takes over. It's almost as if I see red, brain checks out for a split second, and pure emotion unleashes.

For example, I have CRPS in my right arm (typing falls under the painful activities category as well.) Today, I was so enraged during a fight, I threw my keys. It's been years since I threw anything. In fact, from all the atrophy, it was pretty pathetic. I did it, and am now suffering the consequences. Yes, I feel like an idiot. But am I alone?? Insane? How do you explain this to others?

Can anyone else relate?

Typing is killing me...rant over.
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Old 04-22-2012, 08:05 AM #2
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hi there i type one handed for same reasons as you. only been this way a few months tho. i have thrown things in anger, usually my cell phone tho. i can relate with the anger and frustration. i havent found a cure for crps or the anger that comes with it yet.
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Old 04-22-2012, 08:45 AM #3
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There have been times that I have been so upset and angry with something or though less often someone, that I have "tried" to throw
a rock--it went about 4ft. I have wanted to hit or punch--have punching
bag in garage.

These things let off immediate steam and frustration. The increased pain, for me, is inevitable.

I'm learning to let the extreme anger go.....hoping then the danger that usually goes hand in hand will follow.

Just wanted you to know you are not alone...
Wishing you the best.

Abbie
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Old 04-23-2012, 03:51 AM #4
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Quote:
Originally Posted by existing... View Post
Hi All,

This is my first post or contact with any others living with CRPS -- ever.

I was wondering if any of you suffer from the same moronic affliction that I do. That is, when you get exceedingly angry, frustrated, fed-up, do you do something that you know damn well will aggravate your CRPS? I don't know what to liken it to, perhaps a child acting out even though they know the consequences.

I've been dealing with CRPS for 3.5 years. My doctors remark that the only way I've been able to do so "well" is because I've been looking at it from an academic perspective. That is, I've never seen the point of the "Whoa is me" "Why me?" schtick. If I have an incurable disease, it is what it is and I can only choose to move forward with the treatments that make life bearable--however brutal they may be.

However, in those years of calm, a few times I've snapped. Almost a self-sabotage of sorts. The mindset of "I'm going to hurt anyway, so it might as well be on my own terms for once" takes over. It's almost as if I see red, brain checks out for a split second, and pure emotion unleashes.

For example, I have CRPS in my right arm (typing falls under the painful activities category as well.) Today, I was so enraged during a fight, I threw my keys. It's been years since I threw anything. In fact, from all the atrophy, it was pretty pathetic. I did it, and am now suffering the consequences. Yes, I feel like an idiot. But am I alone?? Insane? How do you explain this to others?

Can anyone else relate?

Typing is killing me...rant over.
OMG yes! You are not alone! But, I can tell you that relieving that frustration is not always all bad...for example I went for a long walk at a brisk pace (I was VERY angry), after walking for quite a while I was not suffering enough so I began to jog slowly (I used to jog often to relieve stress), I expected massive feedback when I returned home so I sat in an icy bathtub (ok cold...but no ice). I learned that impact actually stimulated some of my muscles to work again that hadn't worked in months! In fact I had been doing PT exercises not even knowing the muscles weren't firing and that others had taken their place!

Message from me? Releasing anger isn't all bad and the childish tantrums we can unleash come with a price but they also keep us fighting and moving forward and learning. Don't worry, you are not alone and we're all here to get and give support no matter how we got in to this pain...it all hurts!
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Old 04-27-2012, 10:00 AM #5
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Quote:
Originally Posted by agirl View Post
OMG yes! You are not alone! But, I can tell you that relieving that frustration is not always all bad...for example I went for a long walk at a brisk pace (I was VERY angry), after walking for quite a while I was not suffering enough so I began to jog slowly (I used to jog often to relieve stress), I expected massive feedback when I returned home so I sat in an icy bathtub (ok cold...but no ice). I learned that impact actually stimulated some of my muscles to work again that hadn't worked in months! In fact I had been doing PT exercises not even knowing the muscles weren't firing and that others had taken their place!

Message from me? Releasing anger isn't all bad and the childish tantrums we can unleash come with a price but they also keep us fighting and moving forward and learning. Don't worry, you are not alone and we're all here to get and give support no matter how we got in to this pain...it all hurts!
OHHHH hell yeah. so many i lost count. my first tantrum i threw my crutches through a wall. with I had to repair before my wife came home and and I had to explain then I got sooo frustrated once i threw my cain into the kitchen and missed hitting something so that was un satisfying so i picked up a bottle and threw it through the kitchen window(unfortunately I had an audience of 5 children( that scared me more then them , in fact they pick on me about it) so now I try really hard to keep my mind focused and hold bak the anger and frustration till I am alone. though I still mess up every one is aware it might happen. it is usually always my cane or walker i throw . and then i suffer more pain as a result of my adult bay tantrum. the movie anger management helps me a lot believe it or not as now i say goose blah blah and the humor behind it shorts out my unreasonable anger and rage.
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Old 04-27-2012, 10:23 AM #6
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Grin Anger is The Best Release

Quote:
Originally Posted by existing... View Post
Hi All,

This is my first post or contact with any others living with CRPS -- ever.

I was wondering if any of you suffer from the same moronic affliction that I do. That is, when you get exceedingly angry, frustrated, fed-up, do you do something that you know damn well will aggravate your CRPS? I don't know what to liken it to, perhaps a child acting out even though they know the consequences.

I've been dealing with CRPS for 3.5 years. My doctors remark that the only way I've been able to do so "well" is because I've been looking at it from an academic perspective. That is, I've never seen the point of the "Whoa is me" "Why me?" schtick. If I have an incurable disease, it is what it is and I can only choose to move forward with the treatments that make life bearable--however brutal they may be.

However, in those years of calm, a few times I've snapped. Almost a self-sabotage of sorts. The mindset of "I'm going to hurt anyway, so it might as well be on my own terms for once" takes over. It's almost as if I see red, brain checks out for a split second, and pure emotion unleashes.

For example, I have CRPS in my right arm (typing falls under the painful activities category as well.) Today, I was so enraged during a fight, I threw my keys. It's been years since I threw anything. In fact, from all the atrophy, it was pretty pathetic. I did it, and am now suffering the consequences. Yes, I feel like an idiot. But am I alone?? Insane? How do you explain this to others?

Can anyone else relate?

Typing is killing me...rant over.
Ive had CRPS for just a year and I feel so sorry for my Wife . I am always loosing it with my self as I have always been active and always fixed things and been my own boss. I am finding if you bite your tongue and put your brain in gear before you loose it , you can find an alternative to the problem that was making you loose it in the first place and then you feel as if you are beating the CRPS and dam pain and I have a little grin inside Knowing I'm back in control. It doesn't last long and the pain takes control again but why its there in my mind It feels a lot better than loosing it.
End of the day pain gets on ya wick so you have to take control of it. Thats Life.
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Old 05-01-2012, 11:56 PM #7
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Usually, my overdoing it/doing something that I KNOW will increase my pain is a very purposeful thing......for example, recently goofing around in a 2 on 2 basketball game after a family gathering.....or dancing and raising my L arm.

I think the 'excuse' or 'explanation' is the same though.......sometimes we need to just literally throw caution to the wind and MOVE to prove we are still alive.....still want to do what we used to do when we were happy or angry and momentarily 'forget' our limitations.......although our bodies sure can remind us with added pain !

All of us need a stress relief at times.

I'll bet it hurt again when you had to bend over and pick up the keys !
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