I just found this forum today and was so happy to find some of the members from the original forum.

I hope you have all been as pain fee as possible and that you have had a good summer.

I read where some of you have had problems with spreading or addditional symptoms and am very sorry to hear that.

I just read all of the messages on this RSD forum and would like to say hello to all of you. My brain is unable to remember much but hello to Kari, Kate, Roz, Allen, Mark, GnP, Liz, Hope, Jose, and any I may have forgotten. Also, a big welcome to new members.

Kate - your new daughter is just beautiful!!!!!!! How are your other children doing? I bet they just adore their new sister.

Artist - I am so sorry you are having trouble with your hand. If it feels better after resting, perhaps one of those wrist supports you can get at the drugstore will relieve some of the pain. I had that problem before and wore one to bed at night and it really helped. The doctor told me to wear it at work also but I could not type with it on. It took some time but my wrist and hand improved.

Roz - did you get to move into your cabin?

Jose - I stil enjoy your long posts - they are a fun read.

Allen - I see that you are still hanging in there. I hope that you will soon be rewarded with SSD. Anyone can see that you cannot work!

Mark - The terrible luck you have had is just awful. I hope you can find relief from your pain and things get better for you.

All the others I did not mention. It is so great to find you again. You have all been so supportive. It is so important to be able to go someplace where people really understand your pain and can answer questions. A place where someone can go to just to vent can help with the stress this disease causes. A forum family can become as important as friends and immediate family in dealing with RSD.

Sorry this post is so long and that I ramble so much. I hope my sentences make sense. I find that I have difficulty finding words when I speak and when I write it is even worse.

Regards, Lil

PS My name on the original Brain Talk is L Diana

hi lil,

always good to see one of the old gang show up -- welcome!

liz

Hi Lil,

It's so exciting to see people making their way here...great to see you! Thanks for that suggestion. Yes, there's nothing to lose by doing that, is there, although like you I won't be able to wear it during the day except on the computer, but it could be a very big help there.

Things go slowly with the docs (I use the HK public health system, very good, very cheap but very slow!) I think I'm probably going to go with my own diagnosis till they say different; it can't be detrimental (to assume it's repetitive thingy, I mean) so I may as well

BTW, if you have any old forum contacts, let them know where we are - we need eachother!

all the best.

Nice to see you back L Diana.
Seems like years since BT went down. So, how have you been?
Any update on how you are feeling?

I know you had some tough times..Yes, many have had spread,
too bad many doctors don't believe in it or only believe it goes from one side to the other.

It seems to me there are a lot of doctors who don't know much about rsd,
but there are just as many who are ignorant and from the OLD SCHOOL.

They think you have to have 10 symptoms all at the same time and forever.
Updated studies are proving differently,..... i.e. symptoms at "some time"
of swelling. Some studies show some cases show symptoms except PAIN start to go away after a few years, or that they come and go.
How do we get these doctors re-educated?
Pain remains and is the major problem. But pain is subjective, so they doubt you have RSD if you need to change doctors due to moving.

We've discussed it before on the formum that many of us have different
symptoms than the next person. Docs need to get a clue about that.

Off my soapbox now, and hoping that all have a good nights sleep and wake up feeling better. One of those good pain days........isn't that an oxymoron.

Anyway, nice to see you and please come back often. WE've missed you

{{{hugs}}}
Hope

Hi Diane,
I hope these lines find your pain levels down at least some. I am soo happy to hear you found your way back.

I love my little cabin, it is beautiful here. I just had my kitchen updated and they did a beautiful job. I am considering adding on another bath and bedroom. Ever since I have been hurt I always have a construction project going on.

But the medical treatment close to my home as been a different story. The closest Neurologists is about a 1 1/2 hour drive. So I am not sure if I need to go back to the city.

Big Huge Hugs, Roz