NeuroTalk Support Groups - Help! We need to find Specialists for CRPS in the Portland, OR Area

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Help! We need to find Specialists for CRPS in the Portland, OR Area (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/169354-help-specialists-crps-portland.html)

Quote:

Originally Posted by MOOK (Post 881668)

Thanks for all the information. We recently went to a Ortho Dr. at Legacy Emanuel Hospital. He confirmed there is no structural damage to her ankle/foot. We told him our Physical Therapist is the one that diagnosed her with CRPS. He said she doesn't show all the signs but it could be. He referred us to a Dr at The Children's Hospital at Legacy Emanuel in Portland, OR. It would be in the Pediatric Rehabilitation Services part of the hospital. The Dr.'s trained with the Rehab center in Philadelphia that specializes in intense rehab for people (I think mainly younger people) suffering with CRPS. We are scheduled to consult with them next week. I will keep everyone posted. She has been in PT 3x a week. She had back to back no pain days. However, she says her leg feels "tired". I'm not sure what that means. Hard for an 11 yr to explain. Wish us luck.

I really hope this program works out. I have heard good things about these programs for Children...they have the best chances at remission. It's great to hear that she had back to back no pain days. Good luck to both of you!

Quote:

Originally Posted by CoralToe (Post 877130)

Hey Mook,

I live in Seattle, WA and my pain doc here has just opened a sister clinic down in Portland. She splits her time between offices...but she has been a Godsend for me. She treats many patients with CRPS. I'm sure it is not quiet as goo as one of the BigWigs talked about so often here...but I have found her to be extrememly helpful. I'm not sure what the forum rules are here, and if I can post names/clinics...but if you want more info shoot me a PM.

-Heather

Hi Heather 👋🏼

Just became member & saw your post. Never been part of forum before, so hope doing this right . I’m very interested n getting the info on your pain specialist for my CRPS/RSD. Been in severe flare for 8 months now, in & out of hospital but it nice they stabilize my vitals, just send me home, so will only go now if becomes life threatening.

Don’t know how to to DM on here. But if you could help provide that… can’t tell you how grateful I’d be 🙏🏼

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