Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-22-2012, 06:45 AM #11
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Originally Posted by MOOK View Post
Thanks for all the information. We recently went to a Ortho Dr. at Legacy Emanuel Hospital. He confirmed there is no structural damage to her ankle/foot. We told him our Physical Therapist is the one that diagnosed her with CRPS. He said she doesn't show all the signs but it could be. He referred us to a Dr at The Children's Hospital at Legacy Emanuel in Portland, OR. It would be in the Pediatric Rehabilitation Services part of the hospital. The Dr.'s trained with the Rehab center in Philadelphia that specializes in intense rehab for people (I think mainly younger people) suffering with CRPS. We are scheduled to consult with them next week. I will keep everyone posted. She has been in PT 3x a week. She had back to back no pain days. However, she says her leg feels "tired". I'm not sure what that means. Hard for an 11 yr to explain. Wish us luck.
I really hope this program works out. I have heard good things about these programs for Children...they have the best chances at remission. It's great to hear that she had back to back no pain days. Good luck to both of you!
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