Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-22-2012, 06:45 AM #11
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Originally Posted by MOOK View Post
Thanks for all the information. We recently went to a Ortho Dr. at Legacy Emanuel Hospital. He confirmed there is no structural damage to her ankle/foot. We told him our Physical Therapist is the one that diagnosed her with CRPS. He said she doesn't show all the signs but it could be. He referred us to a Dr at The Children's Hospital at Legacy Emanuel in Portland, OR. It would be in the Pediatric Rehabilitation Services part of the hospital. The Dr.'s trained with the Rehab center in Philadelphia that specializes in intense rehab for people (I think mainly younger people) suffering with CRPS. We are scheduled to consult with them next week. I will keep everyone posted. She has been in PT 3x a week. She had back to back no pain days. However, she says her leg feels "tired". I'm not sure what that means. Hard for an 11 yr to explain. Wish us luck.
I really hope this program works out. I have heard good things about these programs for Children...they have the best chances at remission. It's great to hear that she had back to back no pain days. Good luck to both of you!
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Old 06-06-2024, 03:48 AM #12
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Originally Posted by CoralToe View Post
Hey Mook,

I live in Seattle, WA and my pain doc here has just opened a sister clinic down in Portland. She splits her time between offices...but she has been a Godsend for me. She treats many patients with CRPS. I'm sure it is not quiet as goo as one of the BigWigs talked about so often here...but I have found her to be extrememly helpful. I'm not sure what the forum rules are here, and if I can post names/clinics...but if you want more info shoot me a PM.

-Heather
Hi Heather 👋🏼

Just became member & saw your post. Never been part of forum before, so hope doing this right . Iím very interested n getting the info on your pain specialist for my CRPS/RSD. Been in severe flare for 8 months now, in & out of hospital but it nice they stabilize my vitals, just send me home, so will only go now if becomes life threatening.

Donít know how to to DM on here. But if you could help provide thatÖ canít tell you how grateful Iíd be 🙏🏼
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Old 06-06-2024, 07:21 PM #13
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You might use our site search or check the sticky threads above the main posting section.
This thread is from back in 2012.
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Old 06-11-2024, 05:26 PM #14
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Appreciate that!
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