Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-04-2007, 10:41 PM #1
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Vicc Vicc is offline
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Join Date: Nov 2006
Location: SE Kansas.
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Vicc Vicc is offline
In Remembrance
Vicc's Avatar
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Default Hair Loss

Some of my hair is nearly as long as Willie Nelson's, most of it isn't; it keeps falling out. Every time I comb my hair (using what used to be called an "Afro" pick comb (7 tines about 2-1/2 inches long and about a quarter inch apart), I come up with a mound of hair.

So much of my hair has ended up on the floor that it wrapped aroung the brush cylinder of the vacuum cleaner and stopped it from turning. My hair is less than half as thick as it was before RSD; probably less than that, my memory of hair past is, like my memory in general; not good.

My hair loss appears to be random throughout my scalp as there are no patches that seem barer than anyplace else, and I'm grateful for that; I don't know what I'd do it it looked like mange.

I "Yahoo'd" hair and learned that we are born with about 100,000 follicles in our scalp, and if you lose one you only have 99,999. Since my hair ranges in length from 1/4 inch to 23 inches its obvious that new hair replaces hair that falls out, and it is definitely falling out since each hair has a root on the end. A very tiny, very dry root with no pithy tissue that is usually found when a hair is pulled out.

I'd say about 25% of the hair that falls out appears to be growing abnormally; most of it sort of rippled, like the old-fashioned ribbons that you could drag your scissors along to make it curl. A small amount is much thicker than the other hairs.

The bottom line is that this is making me very unhappy. I'm what could generously be called "homely" and my hair is my best feature; it also hides my ears. I've tried different shampoos and conditioners; even followed a beautician's suggestion that I leave the conditioner in, wrap my head in a towel and keep dampening the towel to keep the hair moisturized. Nothing worked.

I'll have more to say in a couple days, but before that I'd like to know how many others have these sorts of problems and if you do - or did - what have you tried and what worked?

I've seen posts on hair loss before, so I know I'm not alone in this...Vic
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