Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-17-2012, 01:00 AM #1
rachphil rachphil is offline
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Join Date: May 2012
Posts: 1
10 yr Member
rachphil rachphil is offline
New Member
 
Join Date: May 2012
Posts: 1
10 yr Member
Question Need advice and help!

Six years ago I had a Spinal cord Neuro Stimulator Inplanted, and for a few years it gave me some relief. This past year had been hell, my Pain management doctor is amazing and had really bee working with me on different medications, and trying to help find away for me to manage with the pain. Meanwhile, the battery life on my stimulator was running out and we had decided lets change the battery and while we are at it put in a new lead In a different level of the spine to see if the pain will improve. We did a trial first, wow I finally had sleep again for 3 nights. But then it was time to remove the leads from the trial and schedule for the permanent implant. The day has come, we did it. Now comes the programming, and I tell you I regret taking out the old unit, nothing but trouble. This new advance unit, I am having to charge on a weekly basis, not only that it is supposed to adjust with me when I lie down, and switch from side to side, but instead it is turning off and on when it wants and up and down when it wants to. And, today while I was driving it had turned off, and then turned back on with a big JOLT! Which had caused my right leg to start to shake. To me this implant is becoming more of a liability more than anything, now I am afraid to drive with it on. This implant is affecting my activity level more than my pain, and it's sad because at one time my pain was bad enough that I wanted to cut my own leg off.

So when I got home I proceeded to call my rep, and he is now avoiding me. Which is making me really angry, because he was really sweet and alwayse calling me to see if we got the authorization and now that the surgery is over I guess he feels as if he doesn't need to help out anymore.

So my question is has anyone else had any problems with this new Medtronic SensorRestor Neuru Stimulator? And if so does anyone have any advice on how to handle this situation?

Thank you,
rachphil
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