Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 05-21-2012, 01:04 PM #1
terralyn's Avatar
terralyn terralyn is offline
Junior Member
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
terralyn terralyn is offline
Junior Member
terralyn's Avatar
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
Frown losses

Well my rsd has finally caused me to have to quit working. Ive had an at home daycare for a couple years. Its been getting to this point for a while. I had talked to the parents six months ago about this possibly happening but kept fighting through the pain cause I love what I do. Apart from increased pain my insomnia is horrible and I'm so exhausted I can barely function.
I know others here can relate. I'm just venting.. its sad.
terralyn is offline   Reply With QuoteReply With Quote

advertisement
Old 05-21-2012, 02:55 PM #2
nalakity nalakity is offline
Junior Member
 
Join Date: Apr 2012
Posts: 58
10 yr Member
nalakity nalakity is offline
Junior Member
 
Join Date: Apr 2012
Posts: 58
10 yr Member
Default I'm sorry

I'm sorry, that is sad Keep your head up though...and try not to stress too much...that's bad for us. I know, I know, easier said than done, right?
nalakity is offline   Reply With QuoteReply With Quote
Old 05-21-2012, 03:21 PM #3
terralyn's Avatar
terralyn terralyn is offline
Junior Member
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
terralyn terralyn is offline
Junior Member
terralyn's Avatar
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
Default

Thanks
the positive thing is I will be spending every day in the pool.. I'm hoping it will get rid of some of the stiffness.
terralyn is offline   Reply With QuoteReply With Quote
Old 05-21-2012, 06:11 PM #4
jeichmann21 jeichmann21 is offline
Junior Member
 
Join Date: May 2012
Posts: 6
10 yr Member
jeichmann21 jeichmann21 is offline
Junior Member
 
Join Date: May 2012
Posts: 6
10 yr Member
Default

I know where you are coming from. I own a personal training business and I just told some people yesterday that I'm really considering quitting my business. My clients are very understanding and I can sit most of the time but even just getting to work and setting stuff up and dragging weights around is getting to be too much. Plus I'm 6 month preggers so all around it's tough. I DON'T want to give it up b/c it's my lifeline to normalcy in the midst of all this pain, but I think it's making things worse.

I would definitely suggest taking up a hobbie that involves contact with others. I decided to take up the fiddle so I would have something to do when I'm sitting at home and a weekly class to engage with others.
jeichmann21 is offline   Reply With QuoteReply With Quote
Old 05-21-2012, 07:46 PM #5
terralyn's Avatar
terralyn terralyn is offline
Junior Member
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
terralyn terralyn is offline
Junior Member
terralyn's Avatar
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
Default

Quote:
Originally Posted by jeichmann21 View Post
I know where you are coming from. I own a personal training business and I just told some people yesterday that I'm really considering quitting my business. My clients are very understanding and I can sit most of the time but even just getting to work and setting stuff up and dragging weights around is getting to be too much. Plus I'm 6 month preggers so all around it's tough. I DON'T want to give it up b/c it's my lifeline to normalcy in the midst of all this pain, but I think it's making things worse.

I would definitely suggest taking up a hobbie that involves contact with others. I decided to take up the fiddle so I would have something to do when I'm sitting at home and a weekly class to engage with others.
That's great advice..and easily followed since all the kids I watch are family. Three relatives had babies all within two weeks of eachother. So I have three 1 and 1/2 yr olds... definitely tough to keep up now and I just don't feel safe doing it.
terralyn is offline   Reply With QuoteReply With Quote
Old 05-21-2012, 08:34 PM #6
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Hi

I could list about 50 activities that this disease has taken from me! I try not to dwell but it's hard..since I have limited movement ion arms and legs, my iPad has been my new passion..

Deb
debbiehub is offline   Reply With QuoteReply With Quote
Old 05-21-2012, 10:53 PM #7
terralyn's Avatar
terralyn terralyn is offline
Junior Member
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
terralyn terralyn is offline
Junior Member
terralyn's Avatar
 
Join Date: May 2012
Location: upstate new york
Posts: 87
10 yr Member
Default

Quote:
Originally Posted by debbiehub View Post
I could list about 50 activities that this disease has taken from me! I try not to dwell but it's hard..since I have limited movement ion arms and legs, my iPad has been my new passion..

Deb
me too deb.. this was a big one for me though.
Glad you have found something to focus on.
terralyn is offline   Reply With QuoteReply With Quote
Old 05-22-2012, 11:17 PM #8
painman2009 painman2009 is offline
Member
 
Join Date: Feb 2011
Posts: 362
10 yr Member
painman2009 painman2009 is offline
Member
 
Join Date: Feb 2011
Posts: 362
10 yr Member
Default

this beast has taken oct of my hobbies as well. even playing french horn, and piano are difficult now. I try to be philosophic now, not always good though.
painman2009 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
2008 - Year of Losses Earl The Stumble Inn 16 10-02-2008 01:05 PM
Downing Family Suffers Losses BobbyB ALS News & Research 0 02-29-2008 03:27 PM
Please post your weight losses here!! :) LIZARD Weight Loss & Healthy Living 182 02-03-2008 09:00 AM
Two losses within one week, I can't take it Feebs Coping with Grief & Loss 9 10-23-2006 09:09 PM


All times are GMT -5. The time now is 07:43 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.