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I invite all to seek out an article from Dr Michael Goldberg for further paula abdul info re RSD and other things in 2005 she released er hippaa rights for a previous misunderstanding. ... .also possible other aids in our battle. This is the name of her Treating physician.. ((good stuff))

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Hi- My name is Carol and I have had RSD for 5 years now. I was very upset and angry after watching Paula on Dr. Oz, but after reading your post I am sorry to say that I now am livid.
Allow me to explain: The national average shows that it is taking a patient 6-8 Doctors to get a diagnosis. It took me 15 and almost 1 year!!!!!

Perhaps if your "IDOL" Paula had been in your words "honest about it" and not so "tight lipped" this statistic could be lowered.

Oh and in your words she has CHOSEN to be this way because "people wouldn't hire her" And you want our sympathy-I think not! Have you ever considered the thousands of RSDers (myself included ) that have lost their careers to this monster and not only can no longer work but are denied Social Security benefits, lose Workers Comp cases etc. because no one knows what RSD is!!!!!! Thanks Paula for being tight lipped!

Oh and that is just the beginning of our losses-Try spouses, homes, health insurance, family members, friends, life savings not to mention our self worth!!!! Thanks Paula for being tight lipped!

Again I quote you "Paula tries her best" Really!!!!! Where is her voice when what we need the most is AWARENESS. Has she advocated Legaslators to pass bills requireing Doctors/Nurses just 2 measley hours of training to be able to spot RSD symptoms???? I HAVE!!
Has she started a Support Group and mentored others -Fielding hysteracal phone calls at any hour to help another who suffers????? I Have!!!!

How much money has she contributed to the RSDSA Assoc. for research????
I HAVE !!!!! and proud of it

Has she sponsored any "WaLKS" BALLOON RELEASES for awareness????? I HAVE!!!

Believe me I am not here to toot my own horn-only to open YOUR eyes as to your misguided hero worship by being a "MASSIVE PAULA FAN"
Perhaps you should get your priorities in order and spend your time helping some TRUE HEROES because my heroes are ALL of my fellow RSDers!!!!

You came to OUR forum to seek sympathy for Paula-why not come back to seek awareness and fight for ALL of us!!!!!

Oh and please pass this on to Paula- It is better to stay tight lipped than to mis represent RSD as she did on DR.Oz.

Gently Hugs-Fondly -Carol

Hello everyone, just stepping in here to hopefully calm things down before more comments are made or flames begin to fly.

It's really not worth getting angry at each other.

Dr Oz had a celebrity on his show, probably for ratings reasons.
We don't know the facts or how or why or any of that behind the scenes stuff..
Nobody can guilt or force a celebrity to be a spokesperson if they don't want to, and that is a personal choice for them to make..


If the discussions here become heated towards each other we will be forced to close it.

Thank you for understanding.

I believe I empathize with Carol on this. While I do not discredit Paula for whatever pain disorder she experienced or how she dealt with it, her written word, and others, would seem to indicate that she was dealing with a disorder that at least mimicked RSD, but perhaps not the monster itself. I am happy for her that she beat whatever it is that she suffered from. Does anyone REALLY know since there is no certain diagnostic criteria for RSD/CRPS?

I did not see the show but somewhere I think that I read that she beat "RSD" and as we all know, no one is that lucky! That alone is suspect and suggests something else. Remission is the best we can hope for and that is rare. But then again what do I know, I am just some poor dumb schmuck that has constant permanent pain, lost his career and more...never to return

yes yes I know I'm nuts..... after more research paula has undergone a treatment called pamidronate;bisphosphnate by dr michael goldberg. in camden
and still seeing him. in 2005 i believe paula abdul actually sign a HIPPA release form so the DR could freely discuss the matter to clarify the whole subject. also in this search I also found another drug mentioned (not for paula)its name is SAVELLA. its an opiad ..anyone here of that one???

I took Savella...it didn't do much for me but it was supposed to help with the burning pain. I was suffering from seratonin syndrome (undiagnosed at the time) when I was started on it though and then had a horrible reaction when Cymbalta was added to the mix. The bad reaction may or may not have been related to an interaction with the savella or tramadol but doctor thinks most likely it's because I was already suffering from seratonin syndrome and adding the Cymbalta put me over the edge. It was a very scary time with me to be dealing with all that at the same time as my RSD was spreading unchecked.

Savella is an antidepressant with mixed actions:
Some norepi reuptake, and some serotonin. It has more norepi actions than other mixed drugs like Cymbalta.

It has not been received well by patients. It was approved in other countries before coming to the US. Its main target is for fibromyalgia patients.

sorry i don't know what norepi or reuptake is but I thank you.. I believe that just hit my big no no list thanx..catra and mrs d appreciate it
thanx.....

Caught it online and it was informitive. About time!