Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-23-2012, 08:51 PM #21
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Paula androz. when paula abdul was first injured it was in a high school accident .(she was told she was never going to dance again) she is a fighter then the FACT that she has RSD its questioned by her history alone as this was first diagnosed in her in late 1980,s early 90,s. Remember her car accident around 1991.. this all came out then. but her past is anything but a secret. I am for one extremely displeased with alot regarding the interview but I do know an awful lot about this lady. in fact i also defended her when she was attacked in one of the articles calling her a druggy. paula also has multiple back injuries. as well as lupus and ra. addisons Im not so sure about. I will attack the ice theory for RSD (complete misrepresentation of the RSD community) researching others would tell you that. and some one else mentioned that it is possible that the ice theory for paula could also be (ABC) what ever that may be. but i believe out largest complaint goes to the oz show itself.(please read carefully) we got named as a group.(RSD) and then were not given the face it should have. As a group we all know what it is like to be told this isn't really that bad. so I can't believe as a group we would cast the same stone. But if her intention is to only serve herself then she should keep quiet. We need cold hard truths to be told not a fluff hero story. I AM a big fan of paula and have followed her from her time with michael jackson, though her music, and through a lot of down falls. even with her time with janet jackson brief it might have been. this lady has suffered a lot and has tried to rise above it many times . .. Please i ask that you do follow this forum a little more stay with it and understand this community. also under stand that we are starving for a real break in informing the mass about this infliction. we have to learn about this beast from each other and then train our doctors in this and we do not have the money to get vip treatment and the appropriate studies we need.We as a community are desperate for this.I suggest you speak to dr oz about the injustice he did paula and the rest of us in this community of never ending pain.that would help us all a lot

P.S. scroll to the bottom of the screen to see other forums here on paula abdul
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Old 05-23-2012, 09:58 PM #22
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removed per OP request

Last edited by Jomar; 12-16-2012 at 01:13 PM. Reason: NT guidelines
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Old 05-23-2012, 10:46 PM #23
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Quote:
Originally Posted by PCOS Lady View Post
~ ~ ~
Carol,

I'm new here and had to ask and say...

Have your minerals levels been checked? Especially magnesium?

I ask because a friend of mine who has researched medical info for years came across a magnesium deficiency being a cause of RSD...
- He met a woman dx'd with RSD by a specialist... He told her to dissolve a box of Epsom Salts in a warm bath and sit in it... As soon as she stepped in her body pain started to go away... She went back to the specialist who was amazed she did not have RSD a month later...

Iodine & Magnesium deficiencies create many medical conditions...

OR does RSD include many diverse complexities?

Christie
I do find it odd the medical world is not finding cures and relief for conditions today....
hello my levels are all good(right now) it is possible that RSD just really complex.. CRPS. complex regional pain syndrome) they still do not understand why this happens , they just know the most common starts to this. they have also noted that some get it from getting sick or just wake up one day in a lot of pain. those are least common but still it exists.
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Old 05-23-2012, 10:51 PM #24
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hey I was on the RSDsA web site and noted an article about the embrel she uses is for RA. check it out if you get a chnce
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Old 05-24-2012, 12:07 AM #25
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yes yes I know I'm nuts..... after more research paula has undergone a treatment called pamidronate;bisphosphnate by dr michael goldberg. in camden
and still seeing him. in 2005 i believe paula abdul actually sign a HIPPA release form so the DR could freely discuss the matter to clarify the whole subject. also in this search I also found another drug mentioned (not for paula)its name is SAVELLA. its an opiad ..anyone here of that one???
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Old 05-24-2012, 06:01 AM #26
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Quote:
Originally Posted by painman2009 View Post
yes yes I know I'm nuts..... after more research paula has undergone a treatment called pamidronate;bisphosphnate by dr michael goldberg. in camden
and still seeing him. in 2005 i believe paula abdul actually sign a HIPPA release form so the DR could freely discuss the matter to clarify the whole subject. also in this search I also found another drug mentioned (not for paula)its name is SAVELLA. its an opiad ..anyone here of that one???
I took Savella...it didn't do much for me but it was supposed to help with the burning pain. I was suffering from seratonin syndrome (undiagnosed at the time) when I was started on it though and then had a horrible reaction when Cymbalta was added to the mix. The bad reaction may or may not have been related to an interaction with the savella or tramadol but doctor thinks most likely it's because I was already suffering from seratonin syndrome and adding the Cymbalta put me over the edge. It was a very scary time with me to be dealing with all that at the same time as my RSD was spreading unchecked.
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Old 05-24-2012, 06:57 AM #27
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Savella is an antidepressant with mixed actions:
Some norepi reuptake, and some serotonin. It has more norepi actions than other mixed drugs like Cymbalta.

It has not been received well by patients. It was approved in other countries before coming to the US. Its main target is for fibromyalgia patients.
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Old 05-24-2012, 07:15 PM #28
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[quote removed]

Hi- My name is Carol and I have had RSD for 5 years now. I was very upset and angry after watching Paula on Dr. Oz, but after reading your post I am sorry to say that I now am livid.
Allow me to explain: The national average shows that it is taking a patient 6-8 Doctors to get a diagnosis. It took me 15 and almost 1 year!!!!!

Perhaps if your "IDOL" Paula had been in your words "honest about it" and not so "tight lipped" this statistic could be lowered.

Oh and in your words she has CHOSEN to be this way because "people wouldn't hire her" And you want our sympathy-I think not! Have you ever considered the thousands of RSDers (myself included ) that have lost their careers to this monster and not only can no longer work but are denied Social Security benefits, lose Workers Comp cases etc. because no one knows what RSD is!!!!!! Thanks Paula for being tight lipped!

Oh and that is just the beginning of our losses-Try spouses, homes, health insurance, family members, friends, life savings not to mention our self worth!!!! Thanks Paula for being tight lipped!

Again I quote you "Paula tries her best" Really!!!!! Where is her voice when what we need the most is AWARENESS. Has she advocated Legaslators to pass bills requireing Doctors/Nurses just 2 measley hours of training to be able to spot RSD symptoms???? I HAVE!!
Has she started a Support Group and mentored others -Fielding hysteracal phone calls at any hour to help another who suffers????? I Have!!!!

How much money has she contributed to the RSDSA Assoc. for research????
I HAVE !!!!! and proud of it

Has she sponsored any "WaLKS" BALLOON RELEASES for awareness????? I HAVE!!!

Believe me I am not here to toot my own horn-only to open YOUR eyes as to your misguided hero worship by being a "MASSIVE PAULA FAN"
Perhaps you should get your priorities in order and spend your time helping some TRUE HEROES because my heroes are ALL of my fellow RSDers!!!!

You came to OUR forum to seek sympathy for Paula-why not come back to seek awareness and fight for ALL of us!!!!!

Oh and please pass this on to Paula- It is better to stay tight lipped than to mis represent RSD as she did on DR.Oz.

Gently Hugs-Fondly -Carol

Last edited by Jomar; 12-16-2012 at 01:14 PM.
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Old 05-24-2012, 07:36 PM #29
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[quote removed]
I invite all to seek out an article from Dr Michael Goldberg for further paula abdul info re RSD and other things in 2005 she released er hippaa rights for a previous misunderstanding. ... .also possible other aids in our battle. This is the name of her Treating physician.. ((good stuff))

Last edited by Jomar; 12-16-2012 at 01:15 PM.
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Old 05-24-2012, 07:36 PM #30
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Hello everyone, just stepping in here to hopefully calm things down before more comments are made or flames begin to fly.

It's really not worth getting angry at each other.

Dr Oz had a celebrity on his show, probably for ratings reasons.
We don't know the facts or how or why or any of that behind the scenes stuff..
Nobody can guilt or force a celebrity to be a spokesperson if they don't want to, and that is a personal choice for them to make..


If the discussions here become heated towards each other we will be forced to close it.

Thank you for understanding.
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