Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-24-2012, 07:49 PM #31
painman2009 painman2009 is offline
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Originally Posted by mrsD View Post
Savella is an antidepressant with mixed actions:
Some norepi reuptake, and some serotonin. It has more norepi actions than other mixed drugs like Cymbalta.

It has not been received well by patients. It was approved in other countries before coming to the US. Its main target is for fibromyalgia patients.
sorry i don't know what norepi or reuptake is but I thank you.. I believe that just hit my big no no list thanx..catra and mrs d appreciate it
thanx.....
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Old 05-24-2012, 09:08 PM #32
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hello my levels are all good(right now) it is possible that RSD just really complex.. CRPS. complex regional pain syndrome) they still do not understand why this happens , they just know the most common starts to this. they have also noted that some get it from getting sick or just wake up one day in a lot of pain. those are least common but still it exists.
That was me- just woke up and when I stepped down on my right foot WOW PAIN!!!! To this day I cannot recall any specific injury-Go Figure!!
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Old 05-24-2012, 09:33 PM #33
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That was me- just woke up and when I stepped down on my right foot WOW PAIN!!!! To this day I cannot recall any specific injury-Go Figure!!
just goes to show how little is really known still!! at least I know what happened though.
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Old 05-24-2012, 11:21 PM #34
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I was very upset and angry after watching Paula on Dr. Oz, but after reading your post I am sorry to say that I now am livid.


I believe I empathize with Carol on this. While I do not discredit Paula for whatever pain disorder she experienced or how she dealt with it, her written word, and others, would seem to indicate that she was dealing with a disorder that at least mimicked RSD, but perhaps not the monster itself. I am happy for her that she beat whatever it is that she suffered from. Does anyone REALLY know since there is no certain diagnostic criteria for RSD/CRPS?

I did not see the show but somewhere I think that I read that she beat "RSD" and as we all know, no one is that lucky! That alone is suspect and suggests something else. Remission is the best we can hope for and that is rare. But then again what do I know, I am just some poor dumb schmuck that has constant permanent pain, lost his career and more...never to return
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Old 05-25-2012, 03:43 AM #35
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Caught it online and it was informitive. About time!
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Old 05-25-2012, 03:44 AM #36
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my special injury was .........Stumping my toe on the stair case in my home. For real! changed my life.
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Old 05-25-2012, 12:19 PM #37
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my special injury was .........Stumping my toe on the stair case in my home. For real! changed my life.
Wow I am so sorry!!!!-Carol
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Old 05-25-2012, 02:01 PM #38
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removed per OP request

Last edited by Jomar; 12-16-2012 at 01:16 PM.
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Old 05-25-2012, 02:44 PM #39
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The moral of the story.. you never know what the day may bring ..enjoy your life to its fullest no matter what.. my love and wishes to all here.. this is a beast
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Old 05-30-2012, 08:51 AM #40
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[quote removed]

Paula Fan- I have recieved many PM's text, phone calls , e-mails since your initial post. I feel obligated to speak out one final time!
Neurotalk forum (This One For RSD) is a venue that those of us who suffer this monster come to share our experience , strenght, love , support and most of all hope

and some times just to vent. We are a "family" here and it baffles me as to why you chose to come here. Not only that, but how did you find this site? You came here for the sole purpose of defending the action of ONE person who happens to be a celebrity-We didnt ask for any explainations!!!!! This isn't how this works!!!!! We come here for the good of ALL!!!!

You would do more good by following my suggestions in my first reply to you. You obviously have MUCH time on your hands -Why not put it to good use for ALL of us and not just for YOUR idol!!!!!
ie: Contact your Congressmen, State Legislators etc. and implore them to bring to the floor any Bills that relate to awareness and education of RSD/CRPS to doctors and nurses in your state.

Contact Social Security and ask them to PLEASE consider RSD an "automatic " NOT a case by case approval,causing many who are suffering at their worst much agony! Your celebrity doesnt need to worry about these things -does she!!!!!!

Contact Workers Comp in your State and ask them if THEIR doctors are aware of the signs and symptoms of RSD.

Contact the Veterns Hospital in your area and ask the same thing as many of our Vets come back home only to suffer RSD and have to FIGHT for their benefits, are mis diaganosed etc. ANOTHER issue your idol doesnt have to face.

I could go on and on with suggestions for you to help the "Greater Good " and not to come here for "ONE" .Perhaps this will open your heart to spend your idle time much more wisely, *edit*
Gentle Hugs to all-Carol

Last edited by Jomar; 12-16-2012 at 01:17 PM.
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