Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-23-2012, 08:33 PM #1
PCOS Lady PCOS Lady is offline
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Default RSD & Magnesium ?

Quote:
Originally Posted by ballerina View Post
The show has certainly brought the kind of awareness that I could live without. Abdul still performs and adheres to a rather grueling schedule. She still choreographs and dances extensively. I have been following her activities for several years since I am a former dancer. Her age alone is a prohibiting factor in her ability to dance.

One of my neighbors suggested that I could return to dance if I took the drugs and vitamins that "cured" Paula.

I have received similar phone calls from three different friends. One friend said, "you are tough, with hard work like Paula you could return to dance."

Another suggested that I get a personal trainer. "If it worked for Paula it could work for you." I asked her if two years of PT counted?

The other friend suggest I visit Paula's doctor. Hum, seeing the top docs in CRPS in two states, having an excellent team in my own state, and being on the wait list for the top CRPS doc in the world for two years is just not good enough-I need to see the doc no one has ever heard of have a look see at me.

I notice there was no mention of Paula being seen by any of the well known Top Docs in CRPS.

Knowing first hand the kind of daily intense conditioning it takes to be able to keep dancing, particularly at her age, and that Paula has not missed to many beats in that respect I wonder???????

Of course I have not met all people with CRPS but no one I have either met in person or become acquainted with on forums could be in the kind of physical condition and perform in the way Paula does.

"Work Harder" Really????????

Paula is reported to have a "mild case" of CRPS.

Any body out there have that kind of case of CRPS?
~ ~ ~
Carol,

I'm new here and had to ask and say...

Have your minerals levels been checked? Especially magnesium?

I ask because a friend of mine who has researched medical info for years came across a magnesium deficiency being a cause of RSD...
- He met a woman dx'd with RSD by a specialist... He told her to dissolve a box of Epsom Salts in a warm bath and sit in it... As soon as she stepped in her body pain started to go away... She went back to the specialist who was amazed she did not have RSD a month later...

Iodine & Magnesium deficiencies create many medical conditions...

OR does RSD include many diverse complexities?

Christie
I do find it odd the medical world is not finding cures and relief for conditions today....
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Old 05-23-2012, 10:46 PM #2
painman2009 painman2009 is offline
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Quote:
Originally Posted by PCOS Lady View Post
~ ~ ~
Carol,

I'm new here and had to ask and say...

Have your minerals levels been checked? Especially magnesium?

I ask because a friend of mine who has researched medical info for years came across a magnesium deficiency being a cause of RSD...
- He met a woman dx'd with RSD by a specialist... He told her to dissolve a box of Epsom Salts in a warm bath and sit in it... As soon as she stepped in her body pain started to go away... She went back to the specialist who was amazed she did not have RSD a month later...

Iodine & Magnesium deficiencies create many medical conditions...

OR does RSD include many diverse complexities?

Christie
I do find it odd the medical world is not finding cures and relief for conditions today....
hello my levels are all good(right now) it is possible that RSD just really complex.. CRPS. complex regional pain syndrome) they still do not understand why this happens , they just know the most common starts to this. they have also noted that some get it from getting sick or just wake up one day in a lot of pain. those are least common but still it exists.
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Old 05-24-2012, 09:08 PM #3
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Quote:
Originally Posted by painman2009 View Post
hello my levels are all good(right now) it is possible that RSD just really complex.. CRPS. complex regional pain syndrome) they still do not understand why this happens , they just know the most common starts to this. they have also noted that some get it from getting sick or just wake up one day in a lot of pain. those are least common but still it exists.
That was me- just woke up and when I stepped down on my right foot WOW PAIN!!!! To this day I cannot recall any specific injury-Go Figure!!
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Old 05-24-2012, 09:33 PM #4
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That was me- just woke up and when I stepped down on my right foot WOW PAIN!!!! To this day I cannot recall any specific injury-Go Figure!!
just goes to show how little is really known still!! at least I know what happened though.
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Old 05-25-2012, 03:44 AM #5
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my special injury was .........Stumping my toe on the stair case in my home. For real! changed my life.
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Old 05-25-2012, 12:19 PM #6
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my special injury was .........Stumping my toe on the stair case in my home. For real! changed my life.
Wow I am so sorry!!!!-Carol
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Old 05-25-2012, 02:01 PM #7
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removed per OP request

Last edited by Jomar; 12-16-2012 at 01:16 PM.
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Old 05-30-2012, 08:51 AM #8
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[quote removed]

Paula Fan- I have recieved many PM's text, phone calls , e-mails since your initial post. I feel obligated to speak out one final time!
Neurotalk forum (This One For RSD) is a venue that those of us who suffer this monster come to share our experience , strenght, love , support and most of all hope

and some times just to vent. We are a "family" here and it baffles me as to why you chose to come here. Not only that, but how did you find this site? You came here for the sole purpose of defending the action of ONE person who happens to be a celebrity-We didnt ask for any explainations!!!!! This isn't how this works!!!!! We come here for the good of ALL!!!!

You would do more good by following my suggestions in my first reply to you. You obviously have MUCH time on your hands -Why not put it to good use for ALL of us and not just for YOUR idol!!!!!
ie: Contact your Congressmen, State Legislators etc. and implore them to bring to the floor any Bills that relate to awareness and education of RSD/CRPS to doctors and nurses in your state.

Contact Social Security and ask them to PLEASE consider RSD an "automatic " NOT a case by case approval,causing many who are suffering at their worst much agony! Your celebrity doesnt need to worry about these things -does she!!!!!!

Contact Workers Comp in your State and ask them if THEIR doctors are aware of the signs and symptoms of RSD.

Contact the Veterns Hospital in your area and ask the same thing as many of our Vets come back home only to suffer RSD and have to FIGHT for their benefits, are mis diaganosed etc. ANOTHER issue your idol doesnt have to face.

I could go on and on with suggestions for you to help the "Greater Good " and not to come here for "ONE" .Perhaps this will open your heart to spend your idle time much more wisely, *edit*
Gentle Hugs to all-Carol

Last edited by Jomar; 12-16-2012 at 01:17 PM.
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"Thanks for this!" says:
ballerina (05-30-2012), wswells (05-30-2012)
Old 05-25-2012, 02:44 PM #9
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The moral of the story.. you never know what the day may bring ..enjoy your life to its fullest no matter what.. my love and wishes to all here.. this is a beast
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