That was me- just woke up and when I stepped down on my right foot WOW PAIN!!!! To this day I cannot recall any specific injury-Go Figure!!

just goes to show how little is really known still!! at least I know what happened though.

my special injury was .........Stumping my toe on the stair case in my home. For real! changed my life.

Wow I am so sorry!!!!-Carol

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[quote removed]

Paula Fan- I have recieved many PM's text, phone calls , e-mails since your initial post. I feel obligated to speak out one final time!
Neurotalk forum (This One For RSD) is a venue that those of us who suffer this monster come to share our experience , strenght, love , support and most of all hope

and some times just to vent. We are a "family" here and it baffles me as to why you chose to come here. Not only that, but how did you find this site? You came here for the sole purpose of defending the action of ONE person who happens to be a celebrity-We didnt ask for any explainations!!!!! This isn't how this works!!!!! We come here for the good of ALL!!!!

You would do more good by following my suggestions in my first reply to you. You obviously have MUCH time on your hands -Why not put it to good use for ALL of us and not just for YOUR idol!!!!!
ie: Contact your Congressmen, State Legislators etc. and implore them to bring to the floor any Bills that relate to awareness and education of RSD/CRPS to doctors and nurses in your state.

Contact Social Security and ask them to PLEASE consider RSD an "automatic " NOT a case by case approval,causing many who are suffering at their worst much agony! Your celebrity doesnt need to worry about these things -does she!!!!!!

Contact Workers Comp in your State and ask them if THEIR doctors are aware of the signs and symptoms of RSD.

Contact the Veterns Hospital in your area and ask the same thing as many of our Vets come back home only to suffer RSD and have to FIGHT for their benefits, are mis diaganosed etc. ANOTHER issue your idol doesnt have to face.

I could go on and on with suggestions for you to help the "Greater Good " and not to come here for "ONE" .Perhaps this will open your heart to spend your idle time much more wisely, *edit*
Gentle Hugs to all-Carol

I have a few comments regarding your comments.

“Alright-- honestly you guys probably don't think I get it at all. I do really see where you are coming from.”

I don’t speak for others who suffer from CRPS but you have no clue where I am coming from.

“ I also didn't come here to get sympathy for Paula. I really don't think she wants it (otherwise she'd talk more about this)”

How would a Paula Abdul groupie know what she thinks or wants?

You speak of the “Newfound awareness” brought by Ms Abdul. Really? A fifty year old woman who is in top physical condition and can do a triple pirouette and a split. This new kind of awareness is having many I know tell me to “try harder” and I can have the kind of CRPS that Paula has. Many of my friends have suggested I drop my state of the art tDCS treatments and take Enbrel instead. Amazing since all of my family and friends were fairly well informed about my illness and treatments. Boy what a difference a celebrity can make!

“ I can't even understand what something like ice has anything to do with it”

You said you wanted to help. I have a few suggestions if help is your motivation.

1) educate yourself about the debilitating consequences of using ice with CRPS. You might then wonder if a doctor who supports the use of ice, really know how to diagnose CRPS. Ditto for prescribing Enbrel for CRPS. Additionally, you might wonder why a celebrity who claims to have a diagnosis of CRPS is not seeing a top CRPS doc.

2) Do some basic education about the physical requirements of the kind of conditioning Ms. Abdul must maintain to perform intricate, complicated and demanding dance moves. Autonomic system dysregulation that accompanies long-term CRPS makes those kinds of movements highly unlikely.

That is why I and my fellow CRPS patients do not have and likely will not have the less “harsh” variety of the illness.

I think you summed things up pretty well yourself.

“ I am aware that I could be doing better things with my time than focusing on the lives of celebrities.”

Like many online forums there are automated bots that index posts for the various search engines. When someone does a search for something or someone - the results come up showing where to see info about that subject.
So readers & new members can come from anywhere.


The main reason I'm posting on this thread is to remind all that we are about being supporting all of our members , even the ones you may not agree with.

We hope that we don't have to edit, close the thread or remove posts, but we will if needed.

Member already stated - ['ll most likely take my leave now though-- I REALLY don't want to upset anyone]

Thank you

Please do take your leave because you just can't possibly know what you are talking about if you don't have RSD or at the very least have a family member or very close friend with RSD. TRUST ME, PAULA DID US NO FAVORS.

I personally doubt Paula has CRPS. She stated that she used ice and it helped her pain. Really???