Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-29-2012, 08:29 PM #51
andrea puskas andrea puskas is offline
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andrea puskas andrea puskas is offline
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Talking Most important is Paula spread The Word of RSD

She seemed so shy and he just kept pounding her about drugs, come on Doc.
She danced around the questions very well I thought.
Most important folks...RSD made the DR.Oz show and we are getting air time, praise God.
I am 21 years living with this circus...came from a sprained ankle in 1991. Took me 4 years to get an answer. 58 doctors later, I found Dr. Marty in Kittanning Pa. He is my saint. By that time i lost my business and the life I knew as a 41 year old single woman business owner.
Did a 16 year Pa. work comp suit and 7 year SSD battle while trying to find treatment.
I do beleive Paula and I could share a few war stories..lol.
Back in the dark day NO ONE knew of this beast. You had to do your own homework to help the lawyers fight for you. And pay them on top of it all...Yeah, it has been a circus. Paula did good for us.
God bless us all, Peace & LUV, Andrea.
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Old 08-29-2012, 09:17 PM #52
painman2009 painman2009 is offline
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Quote:
Originally Posted by andrea puskas View Post
She seemed so shy and he just kept pounding her about drugs, come on Doc.
She danced around the questions very well I thought.
Most important folks...RSD made the DR.Oz show and we are getting air time, praise God.
I am 21 years living with this circus...came from a sprained ankle in 1991. Took me 4 years to get an answer. 58 doctors later, I found Dr. Marty in Kittanning Pa. He is my saint. By that time i lost my business and the life I knew as a 41 year old single woman business owner.
Did a 16 year Pa. work comp suit and 7 year SSD battle while trying to find treatment.
I do beleive Paula and I could share a few war stories..lol.
Back in the dark day NO ONE knew of this beast. You had to do your own homework to help the lawyers fight for you. And pay them on top of it all...Yeah, it has been a circus. Paula did good for us.
God bless us all, Peace & LUV, Andrea.
..So what you are saying is we still havent had any progress. the dark days are still here.
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Old 08-30-2012, 06:23 PM #53
andrea puskas andrea puskas is offline
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andrea puskas andrea puskas is offline
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Default Dark in in the eye of the beholder.

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..So what you are saying is we still havent had any progress. the dark days are still here.
Hello, New here and trying to find my way around.

During Civil War times, the wounded were not recovering and dealing with pain, edema and atrophy issue that made no sence to the up and coming medical profession.
RSD was originally called Sudeks Atrophy named after the fisrt doctor to document these bizzar happenings, while trying to help the soilders. They used drugs back then too. Little House on The Prairre tells a tale of such sadness.

RSD is a pickle...are we still in the dark ages? They know they can't fix you so they either throw you to a different doctor or just throw you away after your ins. runs out. In the sixties in California, there were a few documented full recoveries useing LSD. (today it is kenidine or however ya spell it))
That is a Taboo subject however. It was the Hippie days and all drugs made you a junky and the government steeped in cause it worked......least that was what my homework assigment revealed.

My question has always been, how did the medical profession have any reference to state the facts of CATCH IT EARLY...They were experimenting back in the Dark ages too.
RSD was a big up n coming money maker for the System. It just costs more to be in the dark ages these days.
I have a video of a Brain surgury in California aired on CBS in 1998. The nerve problem in his brain was repaired and he had full recovery. He caught it early and his was an isolated case.
This is why doctors are called Practising Pysicians..they are practising.
I mean that with no disrespect to the good docs.
Like any other profession, there are good n bad. These men and women are not God, they are human beings doing a job. They can't always Fix things.

Dare I reveal how many doctors told me that it was all in my head. I didn't have a stroke, I sprained my ankle.......It would make you sick.
However, they are correct. It is a brain malfunction of the Lymbic portion of the brain disturbing and degenorating the Automonic system and functions that control our independent actions and functions. It controlls your sweat, saliva, urine flow, hunger pains, sleep, walking, seeing, hearing, emotion so many things you don't even think of on a daily basis.
Yes, there are other nervous systems in these functions but, they are all connected in the brain and RSD is a Pickle.

God hands out miracles every second of the day, I will pray you get one.
I have had many in these 21 years. Had a mini lighting strick one time, got my bad arm and it was 80% better for a few months. A few is better than none at all.

My best thoughts to leave you with are:
Educate yourself about the functions of the brain. Look at the mechanics of it and the different systems and what they do. Understand that the medical system is there to help, but only God can fix things once they are so wacked out.
If they would operate on these areas to try and fix you, they would have to dysect you so badly that you would not make it off the table.

Try not to harp on how badly the system angers you, those type of thoughts stir up The Lymic System and cause more pain thru the emotions.
If you have added issues of with a comp carrier or Social Sec. that burden creates a world of confusion and hurt. If that be the case, again, educaed yourself and learn the game so that you can be a good player of the game.
Unfortunatley, that is what it is--- and so much of our greif and pain has MONEY as the bottom line.
Are we in the Dark Ages?
NO We are living in a faithful time when all is possible thur self motivation, knowledge, and Faith.
You have to change your thinking patterns and it is not easy or swift.

As for treatment I prefer Alternative Care. Hope this has helped you some, and I know I have not given you any magic answer for how badly you hurt.
It steals your life ...if you let it. Keep Truckin" and be good to yourself.
Peace & LUV, Andrea
R.S.D from Mars with L.U.V. Lending Unity for Victory.
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Old 08-31-2012, 05:09 PM #54
1sadhaka 1sadhaka is offline
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Please do take your leave because you just can't possibly know what you are talking about if you don't have RSD or at the very least have a family member or very close friend with RSD. TRUST ME, PAULA DID US NO FAVORS.
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Old 09-01-2012, 12:11 AM #55
Diamond Lil Diamond Lil is offline
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Default Paula on Dr Oz

I personally doubt Paula has CRPS. She stated that she used ice and it helped her pain. Really???
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